Tuesday 6 March 2018

Oxleas Learning Disability Bulletin for March 2018





Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.


If you would like to receive an email alert about future bulletins please send an email to
Steve Hardy.


All links are written in blue or grey and worked on the 6th March 2018.

1. Stories of the month!




Meet The 25-Year-Old On A Mission To Help Disabled People Enjoy Exercise


Students bag a first as Strathclyde University launches pioneering business course for people with learning disabilities


Improving care for people with diabetes and a learning disability


Nominations are open until the 27th April - get nominating!




Communication conundrum: The person inside - Hari Srinivasan, The Daily Californian


Doors opening for a RNLD - Janice Algar, ALD at Oxleas


Following My Dreams as Someone on the Autism Spectrum - Murray MacDonald, The Mighty


How Autism Affects My Sex Life - Joanna Grace, The Mighty


Steve The Robot Is Helping These Young People With Autism Build Their Social Skills - Amy Packman, Huff Post


Teachers Create Finley's Barkery to Employ Adults on the Autism Spectrum - Jordan Davidson, The Mighty


The achievements and tribulations of a nurse - Steve Hardy, ALD at Oxleas


Their Voice: Moving Mountains creates safe environment for autism community - Monica Villar, Daily Herald


We have opened the Valentine's can of worms - have you? - Claire Bates, Learning Disability Today


What is learning disability nursing? - Anna Johnson & Sian Adcock – The Student Nurses Project


Women with Autism Finally Represented in Movie Starring Dakota Fanning


3. Books and training packs

Population One: Autism, Adversity, and the Will to Succeed - Tyler McNamer


Out now!
10 Rules for Ensuring People with Learning Disabilities and Those Who are on the Autism Spectrum Develop 'Challenging Behaviour': ...And Maybe What to Do About it by Damian Milton


10 rules for ensuring autistic people and people with learning disabilities cannot access healthcare by Viki Ainsworth and Jim Blair


A mismatch of salience  by Dr. Damian Milton




Autism and Intellectual Disability in Adults Volume 2 - Dr. Damian Milton and Prof. Nicola Martin



Autism in a Decentered World - Alice Wexter


Behavior Support for Students with ASD: Practical Help for 10 Common Challenges - Debra Leach


Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively - Andrew Jahoda et al



Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalis​ation - Niklas Altermark 



Making friends at work: Learning to make positive choices in social situations for people with autism - Saffron Gallup



Person-centred Active Support Training Pack (2nd Edition) - Julie Beadle-Brown, Bev Murphy and Jill Bradshaw


Sexuality and Learning Disabilities (2nd edition) - Dr Claire Bates


Successful Health Screening through Desensitisation for People with Learning Disabilities - Lisa Harrington and Sarah Walker

Forthcoming books!


28th February 2018
Safeguarding Adults: Key Themes and Issues - Gillian MacIntrye and Ailsa Stewart


21st March 2018
Difference Not Disorder: Understanding Autism Theory in Practice - Dr. Catherine Harve

15th April 2018
AUTISM UNCENSORED: Pulling Back the Curtain - Whitney Ellenby


30th April 2018
Autism in a Decentered World  - Alice Wexler


13th June 2018
Social Survival: A Manual for those with Autism and Other Logical Thinkers - Amy Eleftheriades


21st June 2018
A Guide to Programs for Parenting Children with Autism Spectrum Disorder, Intellectual Disabilities or Developmental Disabilities: Evidence-Based Guidance for Professionals - John R Lutzker et al


21st June 2018
Successful Social Stories™ for Young Adults with Autism: Growing Up with Social Stories - Siobhan Timmins


1st July 2018
I Am Me: My Personal Journey with My Forty Plus Autistic Son - Marlene Ringler


1st July 2018
Belonging and Social Inclusion for People with Intellectual Disabilities - Iva Strnadova


22nd January 2019
Autism Spectrum Disorder Assessment in Schools -  Laura Dilly and  Christine Hall


18th April 2019
The Moulster and Griffiths Nursing Model: A Framework for Learning Disability Nursing Practice - Gwen Moulster et al


1st January 2020
An Introduction to Intellectual Disabilities - Mary Beirne-Smith and James R. Patton



4. Can You Understand It? team news
The team are presenting a workshop at 'Learning Disability Study Day' held in London on the 15th May. Find out more here.



5. Easy read information

Easy News Issue 31 out now




13th March 2018, Nottingham
Profound and Multiple Learning Disabilities in the Classroom




16th March 2018, Bristol
Bristol Annual Learning Disability Conference 2018


19th March 2018, London
Has Institutionalisation Ended? A Symposium

20th March 2018, London
Improving Care, Saving Lives - People with Learning Disabilites in Acute Care Settings



28th March 2018, Harrowgate
Personal Relationships and Sexuality and People with Learning Disabilities Awareness


11th April 2018, London
Positive Behaviour Support in Social Care Settings for Adults with Learning Disabilities




19th April 2018, Dublin
Positive Choices Conference 2018: 'Heroes and Champions deserve to live a life free from fear




20th April 2018, Dublin
Positive Commitment Conference



23rd April 2018, Cardiff
Practitioner Workshop: End of life care for people with learning disabilities


3rd - 4th May 2018, London
Preparing for Adulthood 




12th - 16th May 2018, Belfast
Royal College of Nursing Congress


15th May 2018, London

Learning Disability Study Day 2018




7th - 8th June 2018, London
Jack Tizard Memorial Lecture and Conference – Expert analysis, new research: what works


12th June 2018, London
Best practice in supporting parents with learning disabilities


9 - 10 July 2018, Manchester
The Patient Safety Congress 




28 November 2018, London
Learning Disability Today Exhibition and Learning Day



7. Guidance and resources


Making Safeguarding Personal: Supporting increased involvement of service users


10 Tips to Calm Down a Child with autism in Meltdown

An Introduction to PBS


How to Teach Children with Autism to Indicate When They are in Pain


How to Write Social Stories for Children With Autism


Improving care for people with diabetes and a learning disability


Improving healthcare access for people with learning disabilities


Managing constipation for someone with a learning disability




People with learning disabilities: making reasonable adjustments


Preparing for a CQC inspection





Poo & You - Dimensions brief guide to constipation

Primary Care Resources for Adults on the Autism Spectrum and their Primary Care Providers



The ‘Autism in the Air’ video series Tips for helping autistic children travel by air!


8. Journals
Advances in Autism
Advances in Mental Health and Intellectual Disabilities
Autism Journal
Autism Parenting Magazine 
British Journal of Learning Disabilities
Journal of Applied Research in Intellectual Disabilities

Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
PMLD Link
Tizard Learning Disability Review


9. News concerning people with learning disabilities and/or autism




Changing Places Campaigners Call On Government To Make Toilets Accessible For All Disabled People - 15th Feb 2018, Huffington Post


Councils struggling to cope with surge in child protection referrals - 17th Feb 2018, The Guardian


Glasgow Specsavers staff take autism awareness course - 21st Feb 2018, The National


Gym Staff Called Man with Autism “Stupid,” So He Taught Himself Law and Sued Them - The Autism Site


Having a learning disability is no bar to successful career, says chef - The Herald Scotland


Hundreds of people with learning disabilities could be missing out on essential health checks - 20th Feb 2018, Eastern Daily Press


Mencap Treat Me Well campaign launched to improve hospital care for vulnerable people - 17th Feb, 2018, Wirral Globe


‘No remorse’ doctor suspended over death of teenager in care home - 21st Feb 2018, The Northern Echo


Psychiatrist suspended for 12 months after man drowned in epileptic fit - 21st Feb 2018, The Guardian


River Island’s Latest Campaign Includes Kids With Disabilities - 20th Feb 2018, Shevolution


The NHS is failing people with learning disabilities – doctors didn’t explain my heart attack - 16th Feb 2018, I News


Time to implement the lessons learned - 19th Feb 2018, Nursing Times


Training could save lives of 1,200 learning disabled people – study  - 15th Feb 2018, The Guardian


'What if they leave her sitting in the corner?' 2nd Feb 2018, BBC







10. Requests


Mencap have started a new campaign to transform how the NHS treats people with a learning disability in hospital - sign up and join the campaign here.


There is a petition to introduce mandatory training in autism for all NHS mental health services. Sign the petition here.


I am a third-year student at the University of Hull. As part of my course I am undertaking a research project and I would like to invite you to take part. The aim of the research is:
A Case Study to look at parents' views of the different factors that influence successful outcomes in post 16 mainstream provision for those with Special Educational Needs / Disabilities (SEND) - find out more here.



NHS England are planning to introduce a flagging system that will be placed on an individuals medical records. This flag will highlight what reasonable adjustments need to be made to support the individual. They want to hear what information you would like included and what you don't want. Complete the survey here. Closes on the 23rd March 2018.


In December 2017, Health Education England (HEE) published Facing the Facts, Shaping the Future, A health and care workforce strategy for England to 2027 and launched a consultation to inform the development of a health and care workforce strategy for publication this summer. Give your views here. Closes on 9th April 2018.




11. Research



Clinical outcomes of staff training in positive behaviour support to reduce challenging behaviour in adults with intellectual disability: cluster randomised controlled trial - Angela Hassiotis et al




Experts: Suicidality Rates Among People with Autism Are “Worryingly High” - A. Stout

See you in April and happy spring!

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