Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.
If you would like to receive an email alert about future bulletins please send an email to Steve Hardy.
All links are written in blue or grey and worked on the 4th April 2018.
This month we have included a new section on MSc and Diploma course. If you want to include your course please send an email.
1. Stories of the month
Autism Awareness Week: Carrie Grant and her daughter Talia on why more needs to be done
A barber soothes a child with autism by singing -- and finds a new purpose
Elections in May 2018: Your vote matters
High praise for support and care staff at Aberdeen village in glowing report by inspectors
JusticeforLB victory as Southern Health NHS Foundation Trust fined over Connor Sparrowhawk's death
'They just start beaming': Surfing program helping kids with autism
When a Boy Got Out of His Seat During an Autism-Friendly Performance of ‘The Lion King’
2. Blogs
Adjustments to services sounds reasonable - Rebecca Hammond, Nursing Times
Autism: ‘I wasn’t defective. I could be explained. I even came with a manual - Méabh Ní Choileáin, The Irish Times
'Communication is a basic human right': How this man with nonverbal autism found his voice
Discussing cyber-bullying in Parliament! - Amy Clarke, Mencap
From atypical to the big bang - the portrayal of people with autism on the small screen - Steve Hardy, ALDatOxleas
From student nurse to clinical director - my career pathway - Lorraine Regan, ALDatOxleas
Girl With Autism Rarely Spoke, But Just Sang With Pentatonix In Powerful Performance - Autism Baydarkh
How tech can support careers and everyday living - Lisa Marie Clinton, LDToday
'I can take on the world' - Billy Wong, Mencap
“It helps my brain. Sometimes it’s a bit hard on my brain”: My experience of co-production with Research Net - Esther Coroneo-Seaman, ALDatOxleas
Jack and Ben's journey to the Virgin Money London Marathon 2018 - Jack Bishop, Mencap
London Landmarks: Rob's story - Rob Holland, Mencap
Loren Snow has autism and is interested in exploring why the condition is more commonly diagnosed in males - Loren Snow, LDToday
My son has Down’s syndrome – and he belongs in a mainstream school - Sally Phillips, Guardian
Our approach to autism support - Mark Wallis, LDToday
Stop Denying People With Learning Disabilities Their Right To Good Eye Sight - Scott Watkin BME, Huffington Post
The Role Only I Can Play for My Adult Son With Autism - Kristen Scott, The Mighty
Treat me well: Holly's story - Holly Hobson, Mencap
Treat me well: Youssef's story - Youssef Abidat, Mencap
Why An Autism Diagnosis Can Be A Necessity - Autism Baydarkh
3. Books
Out now!
10 Rules for Ensuring People with Learning Disabilities and Those Who are on the Autism Spectrum Develop 'Challenging Behaviour': ...And Maybe What to Do About it by Damian Milton
10 rules for ensuring autistic people and people with learning disabilities cannot access healthcare by Viki Ainsworth and Jim Blair
A mismatch of salience by Dr. Damian Milton
Autism and Intellectual Disability in Adults Volume 2 - Dr. Damian Milton and Prof. Nicola Martin
Autism in a Decentered World - Alice Wexter
Behavior Support for Students with ASD: Practical Help for 10 Common Challenges - Debra Leach
Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively - Andrew Jahoda et al
Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalisation - Niklas Altermark
Difference Not Disorder: Understanding Autism Theory in Practice - Dr. Catherine Harve
Making friends at work: Learning to make positive choices in social situations for people with autism - Saffron Gallup
Person-centred Active Support Training Pack (2nd Edition) - Julie Beadle-Brown, Bev Murphy and Jill Bradshaw
Sexuality and Learning Disabilities (2nd edition) - Dr Claire Bates
Successful Health Screening through Desensitisation for People with Learning Disabilities - Lisa Harrington and Sarah Walker
Safeguarding Adults: Key Themes and Issues - Gillian MacIntrye and Ailsa Stewart
Forthcoming books!
15th April 2018
AUTISM UNCENSORED: Pulling Back the Curtain - Whitney Ellenby
30th April 2018
Autism in a Decentered World - Alice Wexler
13th June 2018
Social Survival: A Manual for those with Autism and Other Logical Thinkers - Amy Eleftheriades
21st June 2018
A Guide to Programs for Parenting Children with Autism Spectrum Disorder, Intellectual Disabilities or Developmental Disabilities: Evidence-Based Guidance for Professionals - John R Lutzker et al
21st June 2018
Successful Social Stories™ for Young Adults with Autism: Growing Up with Social Stories - Siobhan Timmins
1st July 2018
I Am Me: My Personal Journey with My Forty Plus Autistic Son - Marlene Ringler
1st July 2018
Belonging and Social Inclusion for People with Intellectual Disabilities - Iva Strnadova
22nd January 2019
Autism Spectrum Disorder Assessment in Schools - Laura Dilly and Christine Hall
18th April 2019
The Moulster and Griffiths Nursing Model: A Framework for Learning Disability Nursing Practice - Gwen Moulster et al
1st January 2020
An Introduction to Intellectual Disabilities - Mary Beirne-Smith and James R. Patton
4. Can You Understand It? team news
5. Courses
MSc Developmental Disorders - University of Nottingham
MSc Disability Studies: Inclusive Theory and Research - University of Bristol
MSc/PDip Intellectual Disability Nursing - AIT, Ireland
MSc in Intellectual Disability Nursing Practice - DCU Ireland
MSc Psychology and Learning Disability - University of Portsmouth
PCert, PDip, MA Intellectual and Developmental Disabilities - The Tizard Centre, University of Kent
PGDip/MSc Adults with Learning Disabilities who have Significant and Complex Needs – Distance Learning - St Andrews University
6. Easy Read
How to get easy to understand information about health care
7. Events
10th April 2018, Nuneaton
Supporting People with a Learning Disability through Loss and Bereavement
11th April 2018, London
Positive Behaviour Support in Social Care Settings for Adults with Learning Disabilities
19th April 2018, Dublin
Positive Choices Conference 2018: 'Heroes and Champions deserve to live a life free from fear
20th April 2018, Dublin
Positive Commitment Conference
23rd April 2018, Bristol
Supporting People with a Learning Disability Through Loss and Bereavement
23rd April 2018, Cardiff
Practitioner Workshop: End of life care for people with learning disabilities
26th April 2018, Plymouth
Supporting Medication - Train the trainer
27th April 2018, Chesterfield
MCA and DoLS: Train the Trainer
3rd May 2018, Oakhampton
Personal Relationships and Sexuality and People with Learning Disabilities Awareness
3rd - 4th May 2018, London
Preparing for Adulthood
11th May 2018, PlymouthSensory Lexicon
12th - 16th May 2018, Belfast
Royal College of Nursing Congress
15th May 2018, London
Learning Disability Study Day 2018
15th May 2018, Venue TBC
London Learning Disability Nursing Workforce Summit
18th May 2018, Bristol
Sensory Lexicon
7th - 8th June 2018, London
Jack Tizard Memorial Lecture and Conference – Expert analysis, new research: what works
12th June 2018, London
Best practice in supporting parents with learning disabilities
22nd June 2018, Cambridge
Sensory Lexicon
29th June 2018, Manchester
Sensory Lexicon
5th - 6th July 2018, London
The Super Sensory Lexicon
9 - 10 July 2018, Manchester
The Patient Safety Congress
13th July 2018, Nottingham
Sensory Lexicon
28 November 2018, London
Learning Disability Today Exhibition and Learning Day
8. Guidance and resources
A Parent’s Guide: Improving the well-being of young children with learning disabilities - The University of Warwick
How to Reduce Sensory Overload - Autism Baydarkh
Learning disability awareness: what you need to know about learning disability - Mencap
Learning disabilities and behaviour that challenges: service design and delivery - NICE
Making a trip to the doctor easier for people with autism - Health Watch
PIP payments and autism: overcoming the challenges of the application process - Community Care
World Autism Day: the top YouTube accounts shining a light on autism - Evening Standard
9. Journals
Advances in Mental Health and Intellectual Disabilities
Autism Journal
Autism Parenting Magazine
British Journal of Learning Disabilities
Journal of Applied Research in Intellectual Disabilities
Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
PMLD Link
Tizard Learning Disability Review
10. News involving people with learning disabilities and/or autism
Autistic Brothers Create Device Police Can Use to ID People on the Spectrum - 4th March, The Mighty
Autism is a feminist issue - 28th March, I News
Autism is not over-diagnosed in the UK, says Royal College of Psychiatrists - 20th March, LDToday
Autism comedy show backlash is ‘ridiculous and over the top’ - 29th March, I News
'CONFIDENCE BOOST' World Down Syndrome Day – three young Scots with genetic conditions reveal why they love their jobs as campaigners call for more opportunities - 21st March, The Sun
Cruel teenage bullies surround disabled man and abuse him in Harrow shopping centre - 30th March, Get West London
Dating site for those with learning difficulties find love - 16th March, Pirate FM
Disabled women see #MeToo and think: what about us? - 8th March, Guardian
Drama group for adults with disabilities continues to expand due to huge success - 31st March, Scunthorpe Telegraph
Exclusive: university suspends recruitment to learning disability nursing courses - 23rd March, Nursing Standard
Foxes Academy named as UK's best Further Education provider - 7th March, Somerset County Gazette
"Good Morning to You" - Experience Autism from a Beautiful Perspective - 21st March, Cision PR Network
Government will legislate to replace Deprivation of Liberty Safeguards - 14th March, Community Care
Health boards urged to address ‘undignified’ lack of toilets for disabled - 10th March, The Scotsman
Help Enable Scotland stamp out bullying: Be The Change - 9th March, Falkirk Herald
Home for adults with learning disabilities, near Spennymoor, rated outstanding - 10th March, Northern Echo
It opens their eyes': how film is giving young people lessons in life - 29th March, Guardian
Joy as these footballers with learning difficulties win their first match in three years - 30th March, Hull Daily Mail
Jason Manford raises thousands of pounds overnight to help send boy with Down's Syndrome to Disney World - 18th Feb, Manchester Evening News
Judge to rule on artificial feeding of man with severe learning disabilities - 28th Feb, BT
Let’s focus on autism - 30th March, The Hippocratic Post
Liverpool barber shop Fiveways caters for children with autism and ASD - 10th March, Echo
MPs urged to ‘walk in the shoes’ of people with learning disabilities - 21st March, Charity Today
My autistic son had a meltdown - but the council won't overturn my parking ticket - 11th March, Echo
NHS trust fined £2m for Connor Sparrowhawk and Teresa Colvin deaths - 26th March, Guardian
Norfolk author wins national autism award - 13th March, Eastern Daily Press
On World Down Syndrome Day, read our interview with The A Word’s Leon Harrop - 21st March, Big Issue
Peer partners help students with autism join playground fun - 6th March, Spectrum
People with autism help train 1000 NHS and social care staff - 27th March, LDToday
People with Down’s Syndrome like my sister don’t need your sympathy – they need jobs - 21st March, The Sun
'Recognise Us': portraits celebrate people with learning disabilities - in pictures - 7th March, Guardian
Social care for younger adults may soon cost more than for the elderly - 1st March, The Economist
Special Olympics brought £3m to Sheffield economy - 28th Feb, BQ
Teen model with Down's syndrome says ‘You can do anything’ - 19th Feb, ITV
Teesside autism campaigner Anna Kennedy honoured in Amnesty International project - 9th March, Gazette Live
The government pledges to tackle unfair care home practices - 6th March, Which
'The uniform and the rules attract autistic people to join the police' 1st April, BBC
Three-and-a-half year wait for autism diagnosis 'far too long', ex-cabinet minister - 29th March, Care Appointments
Toy Shop 'The Entertainer' Rolls Out Nationwide Quiet Hour For Kids With Autism - 15th March, HuffPost
Tracking devices could be lifesavers for children with autism - 12th March, Democrat and Chronicle
Utah Woman with Down Syndrome Hopes Lawsuit Will Lead to a More Independent Life: 'It's My Dream' - 21st Feb, People
'We fear benefit changes could lose our disabled sister her home' - 12th March, BBC
Wheelchair and autism friendly Yeovil barbers Man About Town relocates to town centre spot - 6th March, Somerset Liv
Windsor Street block for people with learning disabilities given green light - 2nd March, Islington Gazette
10. Reports
Everyday Decisions Project Report: Supporting Legal Capacity through Care, Support and Empowerment - Birmingham Law School
11. Research
Almost half of adults with autism struggle with depression
Autism Studies You May Have Seen Recently and What to Know About Them
Black And Latino Children Are Often Overlooked When It Comes To Autism
College students with autism have high rate of suicidal thoughts - Dr Fred Volkmar, Yale University
More vulnerable male adults are victims of forced marriage than previously thought - University of Nottingham
My Marriage My Choice - University of Nottingham
Research finds people with intellectual disabilities not receiving support for big decisions - University of Birmingham
Solitary confinement is counter-therapeutic, according to study - Dr. Rebecca Fish
Why people with autism can find it difficult to empathise - Prof. Simon Baron-Cohen
12. Requests
My name is Lorna Rouse and I am a PhD student with The Open University. I am currently looking for people to take part in my research project exploring primary care diabetes appointments for people with learning disabilities. Research indicates that both type 1 and type 2 diabetes are more prevalent in people with learning disabilities but little is currently known diabetes primary care provision for this population. My research aims to improve understanding of this topic.
I would like to recruit adults who have a learning disability and type 1/type 2diabetes and professionals who have provided primary care diabetes services for adult(s) with learning disabilities within Cambridgeshire and Peterborough CCG geography. Further details can be found at https://diabeteslearningdisabilities.wordpress.com
Sign up for Mencap's 'Treat me well' campaign - simple adjustments make a difference. It's about transform how the NHS treat people with a learning disability in hospitals. Find out here.
13. Focus on 'poo'
Easy read leaflets about bowel and bladder
Managing constipation for someone with a learning disability - A set of resources from Hertfordshire Council
Videos about bowel screening and colonoscopy
Poo & You - Dimensions brief guide to constipation - Video
Happy Spring and see you in May!
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