Adult Learning Disability Service of Oxleas NHS Foundation Trust: November 2018

Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.

If you would like to receive an email alert about future bulletins please send an email to Steve Hardy.

All links are written in blue or grey and worked on the 20th November 2018.

Stories of the month!

Oliver McGowan Mandatory Training - autism and learning disability training survey

Interview: 'Oliver McGowan's name should be given to autism and learning disability training'

Mandatory learning disability training for NHS staff to include autism

Congratulations Sarah on receiving BME from Prince William!

Watch this heart-warming video of Sam visiting his brother!

Get your tickets here!

The autistic teenager making video games to show players what Asperger's is really like

What makes a good self advocacy project - a toolkit

Festival for people with learning disabilities on the Isle of Wight is returning for 2019

My sons have autism – so Stan Lee’s superheroes were invaluable to them

Watchdog praises care home on outskirts of Leeds that helps people with learning disabilities 'achieve their hopes and dreams'

Out of the Shadows: The untold story of people with learning disabilities in prison

Blogs

14 Words to Consider When You Befriend My Son With Autism

A life transformed: Karen’s journey

Access All Areas: Ellen's story

After Autistic College Student Was Assaulted, She Developed a Card to Tell Police About Her Disorder

Demonstrating the value of an acute Learning Disabilities liaison service within Hywel Dda University Health Board

End of life training for social care providers

Farouk leaves hospital

From multiple ATU admissions to independent living – this is Michael’s story

How the right support changed John’s life for the better

Intelligent robots could prove to be a boon for autism therapies

Learning disability nursing is everybody’s field

Learning Disability Policy, Practice, and the Support Worker

Leaving an Assessment and Treatment Unit – Alan’s journey

Mom Writes Open Letter To Stranger Who Said She Shouldn’t Bring Her Autistic Son Out In Public

My Autism Makes Me Different, Not Less

Scottish nurses empowered to help autistic people cope with change

Swapping restraint for Positive Behaviour Support

The benefits of employing a person with a learning disability

The People’s Parliament – Raising the Voices of People with Learning Disabilities

Transforming Care Agenda – Rachel leaves hospital

What makes you decide to move on?

Why we’re challenging behaviour

Books

Learning Disability and Human Rights: A practitioner's guide

Mental Health in Intellectual Disabilities 5th edition

Sexuality and Learning Disabilities (2nd edition)

Courses

MindEd Learning Disability On line course

LeDeR e-learning reviewer training platform is now live

Understanding Autism - an on line course from The Tizard Centre

Easy Read

GP online services – easy read guides

Events

23rd November 2018 - Plymouth
Supporting Medication, Train the Trainer

28th November 2018 - Chesterfield
Supporting Medication: Train the Trainer

7th December 2018 - Launcestor
Mental Capacity Act & Deprivation of Liberty Safeguards Awareness

6th February 2019 - Birmingham
Masterclass on Autism and gender dysphoria

11th February 2019 - Exeter
Supporting People with a Learning Disability through Loss and Bereavement

25th - 26th April 2019, Birmingham
Together, we are better - Positive Choices

23rd - 25th May 2019, Barcelona, Spain
European Congress on Mental Health in Intellectual Disability

Guidance and resources

Care (Education) and Treatment Reviews - The role of health and social care providers

Constipation and learning disabilities grab guide

Justice for LB Toolkit

Mental Capacity (Amendment) Bill Part 2

NICE: Decision-making and mental capacity

Suspicion of sepsis dashboard

Video: Sepsis and people with learning disabilities

What Is Autism Spectrum Disorder? Here's Everything You Should Know About It

What makes a good self advocacy project - a toolkit

Reasonable adjustments for people with a learning disability

News involving those with learning disabilities and autistic people

A Fair, Supportive Society: Summary Report

Research

Men and women really do think differently, say scientists who also claim autism is an extreme version of the 'male brain'

Off-label prescribing of psychotropic drugs to adults on the autism spectrum could be exposing individuals to harm

Over half a million take part in the largest ever study of autism

Oxford Biodynamics launches collaboration to improve autism diagnosis techniques

Why early diagnosis of autism should lead to early intervention

See you in December!

Taken by Brian Aldrich Photography

On the 6^th November, Greenwich Learning Disability

Research Net attended and presented at the ‘Staying Safe,

For People with Learning Disabilities’ event at Charlton

House as part of safeguarding month. Research net are a

group of volunteers and staff who come together to create

projects to improve services and make things better for

people with Learning Disabilities. We are a group of Oxleas

Volunteers; Kevin, Emma, Ron, David, Richard O, Richard F,

Donna and Laura. Staff members Rachel, Amelia, Des and

Annelise from Greenwich Community Learning Disability

Team also came to help. This event was the perfect

opportunity to launch the group’s most recent project – a

‘Keeping Safe, for People with Learning Disabilities’ leaflet. A

lot of people with Learning Disabilities feel unsafe in

Greenwich and this leaflet is designed to make them feel

safer.

We arrived early to make the most of the tea, coffee and

biscuits on offer and have a quick chat about our plan for the

day. We saw lots of familiar faces and it was great to catch

up with them.

Taken by Brian Aldrich Photography

We then heard about the Safe places scheme – which we

had included in our leaflet! This is a great scheme that

provides safe places in the community where people with

Learning Disabilities can go if they get into trouble or feel

unsafe, frightened or bullied.

It was then our turn to present. We all took it in turns to

explain what Research net is and what it is we do. I think we

all felt a bit nervous at the beginning but we all know our

group so well and the important work that we do that once we

started talking it actually went really well! It was great that

everyone in the group had the opportunity to say their bit as

well.

It was great to have an audience of such varied people –

from people with a range of Learning Disabilities to the Fire

Brigade to Trading Standards.

After a quick break (and more tea and coffee of course!)

there were four workshops for the attendees to participate in.

The four workshops were:

Fire Brigade and Police
Research Net (us!)
Trading Standards
Safeguarding

We had decided to split into two different groups so half of us

could run the workshops and the other half could participate

in the other workshops and then we would swap over so

everyone got to do a bit of everything!

In our workshops we had the opportunity to talk more about

our leaflet and answer any questions. We talked about how

we had prepared for our leaflet and thought about the

different worries people with Learning Disabilities have.

Some of the worries we talked about were: Mate/Hate crime,

keeping money safe, how to keep safe at home and in the

community and lots more. We told the group about how we

had interviewed a police officer and the head of safeguarding

for Greenwich, in order to get the answer to some of our

questions. We also talked about what we heard learnt

regarding which is the right number to ring in different

situations, should it be 999, 101 or 111? This can be

confusing for everyone so we explained what an emergency

and that you should always ring 999 if you’re not sure!

In the other workshops, the fire brigade gave us tips on how

to keep safe at home (everyone make sure you check your

fire alarm every 2 weeks!) and Trading Standards taught us

all about how to avoid being scammed (never give your bank

details to anyone!). We even got a sticker to put in our

window to stop unwanted people coming to our door. We

enjoyed these workshops as we could tell them things from

our perspective as well and the difficulties people with

Learning Disabilities may encounter.

At the end the audience were given the opportunity to

feedback and “Have Our Say”. We all said that we would like

to do an event like this again in the future so more people

with Learning Disabilities can feel safe and work together

better with people like the Police.

Everyone at Research Net had a great day and we were so

glad to be able to share our leaflet that we have worked so

hard on. We hope to showcase our leaflet at more events in

the future so watch this space!

Take a look at our website if you’d like to see more or if you’d

like a copy of our leaflet:

http://aldatoxleas.blogspot.com/p/research-net.html

Kevin, Emma, Ron, David, Richard O, Richard F, Donna and Laura

Rachel, Amelia, Des and Annelise

Greenwich ALD Research Net

Adult Learning Disability Service of Oxleas NHS Foundation Trust

Thursday 22 November 2018

Oxleas Learning Disability and Autism Bulletin for November 2018

Research Net go to ‘Staying Safe, For People with Learning Disabilities’ Event

Lloyd visits Goldie Leigh!

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