Thursday 29 March 2018

Sikhism, learning disability and me


I'm going to the Sikh temple in April and I think now would be a good time to talk about my faith and beliefs. What’s it like having a learning disability and being a Sikh?

Its different and has some challenges........

Because I have a learning disability I am sometimes vulnerable, especially when out at nighttime. I am very proud to be a Sikh and wear a turban. But now I only wear a turban for special occasions. This is because groups of men sometimes call me a terrorist and even follow me. This is quite scary. It’s like if you have a different colour of skin they call you a terrorist. Sikhs are a peaceful society. People often make assumptions about being a Sikh and actually know very little about it.

Sikhism
Guru Gobind Singh was born hundreds of years ago. He gave us the 5 symbols of faith, refused to turn to Islam and wrote lots of scriptures.
  • Kesh - uncut hair
  • Kara - a steel bracelet
  • Kanga - a wooden comb
  • Kaccha - cotton underwear
  • Kirpan - steel sword




Sikhs were supposed to carry each of these items with them everywhere. Perhaps you had a carry a sword back in those days for safety but you would be arrested today.

I often go the Sikh temple. It’s a very calm and peaceful place. They accept anyone who needs a place of safety. If you’re homeless or hungry you can keep warm and will be given food and they welcome people from any religion.


Sikh weddings




I especially like Sikh weddings and the amount of celebrations! A wedding lasts for three days:

Day 1 - the man and women have separate blessings.
Day 2 - a pre-wedding party, then go to Mehndi - this is where henna tattooed on to the bride. Then families join together to become one. Everyone put flowers over the husband and wife. Brothers from both sides of family then battle to see who is strongest by picking them up. Then a Granthi reads out the book Guru Grant Sabih
Day 3 - we have the biggest celebration ever, this is my favourite part of the wedding. Sometimes superstars from the Sikh community are hired to perform at the wedding. Then a person banging a big drum comes in.

My community understand and support me. I’m not made to feel different and they respect me. It’s estimated around 15% of Sikhs have different kinds of disabilities. 

I like sharing my culture and religion with other people with learning disabilities. I’m suggesting to Oxleas that we start a group to learn from other cultures, recognised differences and we have similar values. It would be great if they educate the general population about different cultures when they are kids at school. Hopefully then fewer adults will discriminate against Sikhs and others minority’s and we can all become full citizens of a multi cultured society.

Monday 26 March 2018

It's World Autism Awareness Week!












On Wednesday 28th March there is a one-hour special for Channel 4, Anna Richardson and campaigners Georgia Harper and Sam Ahern, who both have autism, set out to uncover the true face of autism in the UK today. Working closely with charities, experts, and people with autism from across the spectrum, the show will challenge what we think we know about autism. Read about 'Are you autistic?' here.

Resources















































Friday 23 March 2018

From student nurse to clinical director - my career pathway




In writing this blog I was asked to think about three things, how I came into nursing , my career journey to date and what was better/worse then and now.

Sounds easy…. ?

My nursing journey started almost thirty years ago and shockingly looking back was an accident rather than a well thought out plan.

As a child I had a friend Rachel who lived a few doors down, she had cerebral Palsy and what I now think was a very mild learning disability, although that was not necessarily how she was treated. I can remember from about the age of 11 recognising the struggles she would face to be accepted. I wanted her to join Girl Guides with me and she was not allowed, I think people thought it would be too rough, we were the girl guides not the karate club and anyway I used to tip her out of her wheelchair onto the grass so we could play and she never came to any harm!

My decision was made I was going to be a “special school teacher”, however after submitting my application to university I was informed that from my year of entry there would no longer be courses specifically for “special education” so there were two options standard teacher training or, they helpfully sent me some other disability related options. On the list was “ Mental Handicap Nursing” a new programme where the teaching was mostly university based to see if that added value to nurses (the programme only ran for two cohorts until they decided there was no added value in nurses having a university education!).

So started my nursing journey, I trained at Monyhull Hospital an old expansive institution in South Birmingham. It was a tough three years. There were some great people and I learned so much  but it is impossible to pretend that things were not difficult. As students we were learning that community care was definitely on the horizon and yet the thinking on most of the wards was anything but progressive.

I have prided myself on a career full of positive experiences and opportunities but it could have never really started, I found myself in trouble on more than one occasion for breaking the rules, the time that most easily springs to mind was when I refused to blend the main course with the dessert for speed of feeding.

The staff, with a few very noteable exceptions were as institutionalised as the service users and my training became an endurance test to the finish line.

On qualifying I breathed a sigh of relief and took a very short term job with the children’s team I had been on placement with to complete a resettlement project and from there took my first “proper” job in Maidstone. Working in a residential service for men with challenging behaviour.

It was here that I had the opportunity to put into practice the best bits of my nurse training, to begin to develop a sense of what a good service looks like and to appreciate the benefits of life in the community.

Over the next three years I completed further academic study and moved to work in a number of different homes within what was then Maidstone Priority Care Trust. It was probably one of the most rewarding times of my career. The service users ensured that my training continued and reminded me why I had chosen this career.

In 1996 I was managing a residential service and although not looking for a new job personal circumstances, my dad had just died and I was about to get married made me look for jobs in the community where regular office hours would give me weekends to focus on my family.

I have Steve (Hardy) to thank for pointing out an opportunity in Oxleas and joined the Trust in 1996 as a community learning disability nurse in the Bexley team.

Community Nursing bought a new and different set of challenges but also a new enjoyment, my clinical skills developed more rapidly than before and the close MDT working was a real privilege. When I look back and answer the question about what was better then it is impossible to think that anything from my training was “better” it is the days as a community nurse in Bexley that will always be my reference point for the “good old days”.

In 2004 I became Oxleas first nurse of the year and later the RCN learning disability nurse of the year. This was for my work with parents with a learning disability. At the time I was mildly embarrassed by the fuss but with hindsight recognise the springboard that I was then given to develop my work across a wider platform than Oxleas and begin to be part of networks beyond the trust.

This certainly made me less worried about change and gave me an appetite for further extending my career, the timing was good in the previous years I had had three children all of whom were now at school and so I decided to give my career a renewed focus.

Since then I feel change has been the norm. I have had roles in Greenwich and Bromley as Nurse Manager, led on establishing Atlas as a new inpatient service, became a consultant nurse and then Clinical Director before taking on a reactively unusual role as both Clinical Director and Associate Service Director.

I believe that change is good with every new role I have had I have learned something new about me, about people with learning disabilities and about how we can develop services.

Improving the health and lives of people with a learning disability has been at the heart of all of the decisions I have made and I know the same is true of all of my colleagues.

The NHS has changed so much in that time and I remain in awe of the fantastic work that our teams do to improve the lives of people with a learning disability even when times are tough. 

I know that all of my colleagues will do a great job in ensuring that there is a bright future for learning disability nursing, this will be challenging and we will need to be creative in embracing new roles and opportunities such as exploring apprenticeships, working in new environments and developing roles in diverse settings.

Society also needs to play catch up in acknowledging the contribution of people with learning disabilities to their communities and I hope that over the next decade we will see greater inclusion and equity.

Current initiatives such as Transforming Care and LeDeR need to provide a legacy of improvements that are realistic and sustainable and there needs to be parity when looking at the resources required to provide safe and effective services.

Am I glad I became an accidental learning disability nurse – absolutely I can't imagine any other career path that would have been more rewarding or bought me in contact with so many amazing people (service users and colleagues).
Lorraine Regan, RNLD

Wednesday 21 March 2018

World Down Syndrome Day



Today is World Down Syndrome Day! If you see someone with Down syndrome today ask them how their day is going, smile and show them how much they are valued.


Here is an infographic regarding how children with Down's syndrome should be triaged and treated.

Friday 16 March 2018

From atypical to the big bang - the portrayal of people with autism on the small screen


I watch quite a few TV programmes that are about or have characters with autism. So I started to think about how are people with autism portrayed in the world of entertainment?

Portrayal of people with autism on the small screen

The A Word has nearly finished its second series airing on prime-time BBC One. The programme centres around ‘Joe’ a five year old boy, who in the first season the family came to terms with his diagnosis of autism. You see glimpses of the assessment process that the Joe and family go through in the second series as he see's a speech and language therapist who is finding out what his communication needs are.  Joe has a gift of knowing the date of release, lyrics and who wrote each song that his father has listened to and this extra-ordinary skill is used as a backdrop throughout the programme. It’s a really good insight into the challenges a family face when the words ‘he has autism’ but also you see the positive and loving side of ‘Joe’ and his family. This is really entertaining TV but educational as well.





One TV show that I love is The Big Bang Theory. If you haven’t seen it it’s based around the daily lives of four individuals, all of whom work at a Californian University. Two of them are physicists, one is an astrophysicist and one is an engineer (who is quite often reminded the only one without a PhD!). One character is called Sheldon and within five minutes of the pilot you start find him rather quirky. As the series progresses you start to see Sheldon display common characteristics of someone with autism such as a lack of social skills, sticking to a routine and paying attention to detail. He also doesn’t seem to empathise with those around him, which is sometimes misunderstood in people on the spectrum. Just like in real life once it’s explained to him what the person is experiencing and the related emotions he then understands what is ‘empathy’ is. But I have watched all 278 episodes of The Big Bang Theory at least three times and although they often talk about his ‘quirky’ characteristics no one says that he has or suggests autism or Asperger’s. But I like to think that we aren’t putting a label on him, we are accepting the character for who he is and sometimes we make adjustments for him but he is still Sheldon.  The ‘Big Bang Theory’ has a spin off season called ‘Young Sheldon’ which recently aired in the UK. We have only seen a few episodes but seeing a 9 year old Sheldon tackle the typical world is really entertaining and educational. 


The teenage years are difficult for anyone to navigate through, like finding your place in the world, developing an identity and combating the mindfield of sexuality. Add the additional diagnosis of ‘autism’ and it becomes even more complex. NetFlix has tried to explore this with a tint of comedy in ‘Atypical’. The main character is Sam, an 18 year old high school student who has fallen in love with his therapist. We see how he takes things literally, has difficulty understanding social cues, has an extra-ordinary interest and knowledge of the Antarctic and speaks in a monotone voice. All of these are recognisable as traits of autism. Where this series does fall down is its main characters (i.e. father) who apparently hasn’t heard of ‘people first’ language and he receives a lecture on this topic. Would a parent of an 18 year old with autism know about this? I think so. But I would still recommend ‘Atypical’ to anyone and it has been given the green light for a second season. I look forward to seeing how ‘Sam’ will make the transition into a young adult and a time in life when he has to make serious decisions, such as going to college. From my work I have seen this as vulnerable time in the lives of late teens with autism, with the risk of developing a mental health problem.



More recently the ABC American channel made the brave decision of making ‘The Good Doctor’. What’s brave about this show? Its main character Shaun Murphy is a surgeon who has autism and more surprising is that this airs on prime time mainstream TV. They gradually explore how autism affects Shaun in every episode, with flash backs to his childhood and whilst promoting the fact his is employable, reliable and although quirky he deals with being socially awkward, a lack of eye contact but he copes with stressful situations. ‘The Good Doctor’ really changed the way people think about autism. In episode five a character turns up to the hospital with severe stomach pain. The character ‘Liam’ has autism but more importantly the actor actually is on the spectrum. We hear that Shaun immediately recognises Liam’s autism even though he has never met an autistic person before. I believe this episode deserves recognition and accolades that I’m sure it will receive. It’s early in its lifetime but it remains in the USA top ratings shows and the UK has started to recognise it as well. I hope that the autism community take pride in this ground breaking programme and show that even an autistic person can hold down a job as a doctor and fit in to the neurotypical world.    

But one question you start to ask yourself while watching these four TV shows is ‘do these characters represent the whole autistic community’?  In one word ‘no’. Don’t get me wrong I love watching them and I’m so glad that they are educational as well entertaining. Yet all four characters have savant like skills and although they have difficulty in life they generally reach high levels of success in education and occupation. But in reality only approximately one in ten have savant qualities.  Additionally where are the women with autism? It’s still predominantly a male condition but we are starting to see an increasing amount of females diagnosed with the spectrum and this is only being picked up later in life. We are still in the infancy of understanding autism and women. Much research and funding is required as well as being represented in the media. 

Between 50% to 75% of people with autism also have learning disabilities. Often these individuals are doubly disadvantaged in society and often face discrimination on all levels. But how many people with autism and learning disability do we see on our TV screens or in the movies?   From memory I can only think of Leonardo DiCaprio in ‘What’s eating Gilber Grape’ as a main character. Inclusion of this group would be a positive step in the right direction and hopefully go some way to breaking down public perception and stigma attached to the labels.

Autism acceptance in reality?

In 2009 the world was first introduced to Susan Boyle. You probably already know the story but this will gently remind you of the impact this lady had on British and world wide entertainment industry. Susan applied for Britain’s Got Talent in 2008 and she got through to the TV auditions. As she walked onto the stage everyone in the audience started to giggle and laugh and began to mock her. She didn’t look like your average TV personality, her fashion sense was somewhat dated and she had a unique sense of humour.  Then she started to sing and at that moment everything changed. She sang ‘I dreamed a dream’ and she blew the audience and the ten million TV viewers away. Everyone was speaking about the talent that Susan has and she received praise from across the globe. She sailed through the rounds of the show and was on track to win.

A few days before the final (according to reports) there was concern for her mental health. Susan eventually came second in the final and everyone was shocked. The day after the final she was admitted to The Priory, a private mental health hospital with being ‘exhausted and emotionally drained’. This was no surprise considering the pressure of media interest and the expectation that she was going to win. But then also add in that her life previously being on the show was predictable, although she entered local talent shows, she was generally in control. Then there’s her behaviour that others consider erratic. The penny dropped in 2012 when she was diagnosed with Asperger’s syndrome, she was on the spectrum. Susan had waited all this time to understand why she didn’t fit in and now the world had to adjust to her. You hear this is common in women being diagnosed later in life and this is an issue that clinicians need to get a grasp of and become much better and quicker. Since she first appeared on Britain’s Got Talent in 2009 she has been nominated and won global music awards, released seven albums and sold around 25 million records. Susan Boyle is living the dream!

In 2017 Chris Packham, naturalist and TV presenter decided to make a documentary for the BBC about what it’s like living with Asperger’s syndrome. This was an insightful, intelligent and brave look at the condition. He announced to the public that he has a form of autism in 2016. What’s great about this documentary is that we shouldn’t see autism as a disability, but it highlights its positive side and how he realised that he couldn’t do his job without Asperger’s.  He is great at explaining it in everyone’s language. He speaks about the highs and lows he has experienced in life but how his overly interest in birds especially the kestrel has helped him cope and help him become the person he is today. He visits Silicon Valley in California where he finds that people in the computer industry employ a significant number of people with autism and I fact welcome people on the spectrum to apply. He speak about the experience of sensory overload, how he can become easily distracted, jumping from one thought to another and how he escapes back to his haven in the New Forest. This is fascinating, entertaining and most of all – educational. 

Autism’s Got Talent is a platform for children and adults on the spectrum to showcase their talent – being singing, dancing, magic tricks or a comedian. The superb show was put together by Anna Kennedy OBE and in 2018 it is about to put on its seventh annual event. At every show competitors get to walk the red carpet, be interviewed by people from the media and to meet some famous faces. The show aims to build self-esteem and confidence and offers individuals to perform in front of a live audience, for some people it’s their first time. This is a great opportunity to learn how the performing arts industry operates but within a safe environment. Hopefully we will get to see some of these performers in the mainstream.

Conclusion

After watching these fictional characters on the small screen and researching about these real life famous people with autism I have become a much bigger fan than before. People with autism have become a regular part of the conversation. It’s an everyday fact that the majority of people have met someone with autism or count them as an acquaintance or even a friend, it’s now becoming normality. Even my five year old nephew knows what autism basically means, as he is a fan of the Power Rangers and one of the four superheroes is on the spectrum. So the entertainment industry might not get it right each time when it comes to autism. But I applaud them as they have raised awareness and one day soon we will see acceptance.


Steve Hardy, RNLD  

The A Word


Atypical is on NetFlix


The Big Bang Theory


The Good Doctor

Monday 12 March 2018

The positives of autism


I found this wonderful poster on Face Book. Harriet Cannon wrote this and the University of Leeds produced it. 

Thursday 8 March 2018

“It helps my brain. Sometimes it’s a bit hard on my brain”: My experience of co-production with Research Net



Greenwich Learning Disability Research Net is a group of Oxleas staff and Oxleas service user volunteers who work collaboratively to help improve and deliver services. The group is based on the principles of co-production and describe themselves as:

“A group of people who volunteer once a week. We come together to talk about Oxleas services to make them better and more accessible. We want to help people with learning disabilities and their carers to feel less isolated. We want to be more involved in our community. We think people underestimate people with learning disabilities”

We currently have seven volunteer members (and are in the process of recruiting two more) and staff from Greenwich CLDT including Psychology, Speech and Language Therapy, Occupational Therapy and Social Care. The group promotes self-advocacy; people speaking up for themselves and being in control of their own lives.

When our Research Net group first came into being, we recruited volunteers from CLDT team meetings, community groups and Oxleas Learning Disability service user events. We held a welcome day to present information about other Research Net groups and research projects and people discussed their ideas and hopes for the group. These included: being safe, no bullying, not getting shh-ed at, being successful and other people being polite and understanding us.

Research Net focus on one project at a time which is based on an issue that is important to the members. Our previous projects have included:

- A sexual health clinic consultation: We talked to CASH staff about how to speak to people with a Learning Disability about sexual health.

- First impressions: What service users want from the first time they go to CLDT.

- Top Tips: Tips for how doctors should treat people with Learning Disabilities.

- Have Your Say Day: Helping to organise and run a Have Your Say Day run by RBG social services.

- Promoting Research Net: Getting the word out about our group and what we do.

Our current project is called Keeping Safe and we are in the process of creating a leaflet about what to do in an emergency and which numbers to call as we noticed that this is really hard and there is very little easy read information out there.

Other “side projects” the group have completed are training GPs, interviewing CLDT staff for recruitment, doing LDSQ training and some conferences and presentations to share our work.

When asked what they like about the group, the members said:

  • “Absolutely brilliant and fantastic”
  • “I think it helps my brain. Sometimes it’s a bit hard on my brain”
  • “Those who are not good on computers get more training”
  • “Wide ranging, cover everything”
  • “Presentations and flyers we produce reach out to much more people”

As we think that things can always be improved, we also asked them what could be better about the group. They said:

  • “continuing to be friendly and supportive”
  • “cup of tea before the group starts”
  • “offer other drinks like juice”
  • “extra biscuits”
  • “a bit more oomph”

As staff members, we have noticed the volunteers developing their skills, increasing in confidence, supporting each other, advocating for themselves and each other and their work is greatly in demand!

We have also faced some challenges as a group though. The HR process of becoming a volunteer is a long and difficult one with the legalities making it hard to make reasonable adjustments. Also, as most of our members have a mild Learning Disability, ensuring our group is representative of all people with Learning Disabilities and making sure that the voices of people with moderate or severe learning disabilities are heard has also been a challenge.

In case anyone is thinking of starting their own Research Net group, the volunteer members have some tips for what makes a good Research Net group:

- “Get ideas from people with Learning Disabilities”

- “Balance of people”

- “Make it fun”

- “Find a room which is big and spacious”

- “No changes to staff”

-“Parties are good- celebrating”

- “Camaraderie”

I will soon be leaving the Trust which also means that I will no longer be a part of Research Net. I am very sad to be leaving the group and will miss it greatly but I also feel that I have learned so much both as a professional and as a person. Attending Research Net every week has been one of the favourite parts of my job and it has been wonderful to see the members grow in knowledge, experience and confidence. They have taught me about the difficulties and discrimination often faced by people with Learning Disabilities and about their resilience, compassion and problem solving. I have seen them comfort each other during personal difficulties and speak up for each other when someone has spoken over them. They have had passionate debates about politics and which picture to use on an easy read leaflet. They have confidently presented their work at conferences and grilled police officers about what training they receive on working with people with Learning Disabilities. I am very proud to have been a part of a group which is taking steps to tackle society’s underestimation of people with Learning Disabilities and I would like to thank the Research Net members for that.


Esther Coroneo-Seaman

Assistant Psychologist
Greenwich CLDT



Tuesday 6 March 2018

Oxleas Learning Disability Bulletin for March 2018





Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.


If you would like to receive an email alert about future bulletins please send an email to
Steve Hardy.


All links are written in blue or grey and worked on the 6th March 2018.

1. Stories of the month!




Meet The 25-Year-Old On A Mission To Help Disabled People Enjoy Exercise


Students bag a first as Strathclyde University launches pioneering business course for people with learning disabilities


Improving care for people with diabetes and a learning disability


Nominations are open until the 27th April - get nominating!




Communication conundrum: The person inside - Hari Srinivasan, The Daily Californian


Doors opening for a RNLD - Janice Algar, ALD at Oxleas


Following My Dreams as Someone on the Autism Spectrum - Murray MacDonald, The Mighty


How Autism Affects My Sex Life - Joanna Grace, The Mighty


Steve The Robot Is Helping These Young People With Autism Build Their Social Skills - Amy Packman, Huff Post


Teachers Create Finley's Barkery to Employ Adults on the Autism Spectrum - Jordan Davidson, The Mighty


The achievements and tribulations of a nurse - Steve Hardy, ALD at Oxleas


Their Voice: Moving Mountains creates safe environment for autism community - Monica Villar, Daily Herald


We have opened the Valentine's can of worms - have you? - Claire Bates, Learning Disability Today


What is learning disability nursing? - Anna Johnson & Sian Adcock – The Student Nurses Project


Women with Autism Finally Represented in Movie Starring Dakota Fanning


3. Books and training packs

Population One: Autism, Adversity, and the Will to Succeed - Tyler McNamer


Out now!
10 Rules for Ensuring People with Learning Disabilities and Those Who are on the Autism Spectrum Develop 'Challenging Behaviour': ...And Maybe What to Do About it by Damian Milton


10 rules for ensuring autistic people and people with learning disabilities cannot access healthcare by Viki Ainsworth and Jim Blair


A mismatch of salience  by Dr. Damian Milton




Autism and Intellectual Disability in Adults Volume 2 - Dr. Damian Milton and Prof. Nicola Martin



Autism in a Decentered World - Alice Wexter


Behavior Support for Students with ASD: Practical Help for 10 Common Challenges - Debra Leach


Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively - Andrew Jahoda et al



Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalis​ation - Niklas Altermark 



Making friends at work: Learning to make positive choices in social situations for people with autism - Saffron Gallup



Person-centred Active Support Training Pack (2nd Edition) - Julie Beadle-Brown, Bev Murphy and Jill Bradshaw


Sexuality and Learning Disabilities (2nd edition) - Dr Claire Bates


Successful Health Screening through Desensitisation for People with Learning Disabilities - Lisa Harrington and Sarah Walker

Forthcoming books!


28th February 2018
Safeguarding Adults: Key Themes and Issues - Gillian MacIntrye and Ailsa Stewart


21st March 2018
Difference Not Disorder: Understanding Autism Theory in Practice - Dr. Catherine Harve

15th April 2018
AUTISM UNCENSORED: Pulling Back the Curtain - Whitney Ellenby


30th April 2018
Autism in a Decentered World  - Alice Wexler


13th June 2018
Social Survival: A Manual for those with Autism and Other Logical Thinkers - Amy Eleftheriades


21st June 2018
A Guide to Programs for Parenting Children with Autism Spectrum Disorder, Intellectual Disabilities or Developmental Disabilities: Evidence-Based Guidance for Professionals - John R Lutzker et al


21st June 2018
Successful Social Stories™ for Young Adults with Autism: Growing Up with Social Stories - Siobhan Timmins


1st July 2018
I Am Me: My Personal Journey with My Forty Plus Autistic Son - Marlene Ringler


1st July 2018
Belonging and Social Inclusion for People with Intellectual Disabilities - Iva Strnadova


22nd January 2019
Autism Spectrum Disorder Assessment in Schools -  Laura Dilly and  Christine Hall


18th April 2019
The Moulster and Griffiths Nursing Model: A Framework for Learning Disability Nursing Practice - Gwen Moulster et al


1st January 2020
An Introduction to Intellectual Disabilities - Mary Beirne-Smith and James R. Patton



4. Can You Understand It? team news
The team are presenting a workshop at 'Learning Disability Study Day' held in London on the 15th May. Find out more here.



5. Easy read information

Easy News Issue 31 out now




13th March 2018, Nottingham
Profound and Multiple Learning Disabilities in the Classroom




16th March 2018, Bristol
Bristol Annual Learning Disability Conference 2018


19th March 2018, London
Has Institutionalisation Ended? A Symposium

20th March 2018, London
Improving Care, Saving Lives - People with Learning Disabilites in Acute Care Settings



28th March 2018, Harrowgate
Personal Relationships and Sexuality and People with Learning Disabilities Awareness


11th April 2018, London
Positive Behaviour Support in Social Care Settings for Adults with Learning Disabilities




19th April 2018, Dublin
Positive Choices Conference 2018: 'Heroes and Champions deserve to live a life free from fear




20th April 2018, Dublin
Positive Commitment Conference



23rd April 2018, Cardiff
Practitioner Workshop: End of life care for people with learning disabilities


3rd - 4th May 2018, London
Preparing for Adulthood 




12th - 16th May 2018, Belfast
Royal College of Nursing Congress


15th May 2018, London

Learning Disability Study Day 2018




7th - 8th June 2018, London
Jack Tizard Memorial Lecture and Conference – Expert analysis, new research: what works


12th June 2018, London
Best practice in supporting parents with learning disabilities


9 - 10 July 2018, Manchester
The Patient Safety Congress 




28 November 2018, London
Learning Disability Today Exhibition and Learning Day



7. Guidance and resources


Making Safeguarding Personal: Supporting increased involvement of service users


10 Tips to Calm Down a Child with autism in Meltdown

An Introduction to PBS


How to Teach Children with Autism to Indicate When They are in Pain


How to Write Social Stories for Children With Autism


Improving care for people with diabetes and a learning disability


Improving healthcare access for people with learning disabilities


Managing constipation for someone with a learning disability




People with learning disabilities: making reasonable adjustments


Preparing for a CQC inspection





Poo & You - Dimensions brief guide to constipation

Primary Care Resources for Adults on the Autism Spectrum and their Primary Care Providers



The ‘Autism in the Air’ video series Tips for helping autistic children travel by air!


8. Journals
Advances in Autism
Advances in Mental Health and Intellectual Disabilities
Autism Journal
Autism Parenting Magazine 
British Journal of Learning Disabilities
Journal of Applied Research in Intellectual Disabilities

Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
PMLD Link
Tizard Learning Disability Review


9. News concerning people with learning disabilities and/or autism




Changing Places Campaigners Call On Government To Make Toilets Accessible For All Disabled People - 15th Feb 2018, Huffington Post


Councils struggling to cope with surge in child protection referrals - 17th Feb 2018, The Guardian


Glasgow Specsavers staff take autism awareness course - 21st Feb 2018, The National


Gym Staff Called Man with Autism “Stupid,” So He Taught Himself Law and Sued Them - The Autism Site


Having a learning disability is no bar to successful career, says chef - The Herald Scotland


Hundreds of people with learning disabilities could be missing out on essential health checks - 20th Feb 2018, Eastern Daily Press


Mencap Treat Me Well campaign launched to improve hospital care for vulnerable people - 17th Feb, 2018, Wirral Globe


‘No remorse’ doctor suspended over death of teenager in care home - 21st Feb 2018, The Northern Echo


Psychiatrist suspended for 12 months after man drowned in epileptic fit - 21st Feb 2018, The Guardian


River Island’s Latest Campaign Includes Kids With Disabilities - 20th Feb 2018, Shevolution


The NHS is failing people with learning disabilities – doctors didn’t explain my heart attack - 16th Feb 2018, I News


Time to implement the lessons learned - 19th Feb 2018, Nursing Times


Training could save lives of 1,200 learning disabled people – study  - 15th Feb 2018, The Guardian


'What if they leave her sitting in the corner?' 2nd Feb 2018, BBC







10. Requests


Mencap have started a new campaign to transform how the NHS treats people with a learning disability in hospital - sign up and join the campaign here.


There is a petition to introduce mandatory training in autism for all NHS mental health services. Sign the petition here.


I am a third-year student at the University of Hull. As part of my course I am undertaking a research project and I would like to invite you to take part. The aim of the research is:
A Case Study to look at parents' views of the different factors that influence successful outcomes in post 16 mainstream provision for those with Special Educational Needs / Disabilities (SEND) - find out more here.



NHS England are planning to introduce a flagging system that will be placed on an individuals medical records. This flag will highlight what reasonable adjustments need to be made to support the individual. They want to hear what information you would like included and what you don't want. Complete the survey here. Closes on the 23rd March 2018.


In December 2017, Health Education England (HEE) published Facing the Facts, Shaping the Future, A health and care workforce strategy for England to 2027 and launched a consultation to inform the development of a health and care workforce strategy for publication this summer. Give your views here. Closes on 9th April 2018.




11. Research



Clinical outcomes of staff training in positive behaviour support to reduce challenging behaviour in adults with intellectual disability: cluster randomised controlled trial - Angela Hassiotis et al




Experts: Suicidality Rates Among People with Autism Are “Worryingly High” - A. Stout

See you in April and happy spring!

Lloyd visits Goldie Leigh!

Lloyd Page from Mencap visits Goldie Leigh! During March earlier this year Lloyd Page who works for National Mencap visited Goldie Le...