Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.
If you would like to receive an email alert about future bulletins please send an email to Steve Hardy.
All links are written in blue or grey and worked on the 6th March 2018.
1. Stories of the month!
Meet The 25-Year-Old On A Mission To Help Disabled People Enjoy Exercise
2. Blogs
3 things I learned from my intellectually disabled son - Emilie Weight, TED
14 Words to Consider When You Befriend My Son With Autism - Karen Hoovern, The Mighty
5 Autism Stereotypes I Fit, and 5 I Don't - Sarah Bartkowski, The Mighty
9 Things People With Autism Wish You Knew - Jakob H, The Autism Site
10 Things Autism Parents Worry About - James Hunt, The Mighty
3 things I learned from my intellectually disabled son - Emilie Weight, TED
14 Words to Consider When You Befriend My Son With Autism - Karen Hoovern, The Mighty
5 Autism Stereotypes I Fit, and 5 I Don't - Sarah Bartkowski, The Mighty
9 Things People With Autism Wish You Knew - Jakob H, The Autism Site
10 Things Autism Parents Worry About - James Hunt, The Mighty
Communication conundrum: The person inside - Hari Srinivasan, The Daily Californian
Doors opening for a RNLD - Janice Algar, ALD at Oxleas
Following My Dreams as Someone on the Autism Spectrum - Murray MacDonald, The Mighty
How Autism Affects My Sex Life - Joanna Grace, The Mighty
Steve The Robot Is Helping These Young People With Autism Build Their Social Skills - Amy Packman, Huff Post
Teachers Create Finley's Barkery to Employ Adults on the Autism Spectrum - Jordan Davidson, The Mighty
The achievements and tribulations of a nurse - Steve Hardy, ALD at Oxleas
Their Voice: Moving Mountains creates safe environment for autism community - Monica Villar, Daily Herald
We have opened the Valentine's can of worms - have you? - Claire Bates, Learning Disability Today
What is learning disability nursing? - Anna Johnson & Sian Adcock – The Student Nurses Project
Women with Autism Finally Represented in Movie Starring Dakota Fanning
3. Books and training packs
Out now!
10 Rules for Ensuring People with Learning Disabilities and Those Who are on the Autism Spectrum Develop 'Challenging Behaviour': ...And Maybe What to Do About it by Damian Milton
10 rules for ensuring autistic people and people with learning disabilities cannot access healthcare by Viki Ainsworth and Jim Blair
A mismatch of salience by Dr. Damian Milton
Autism and Intellectual Disability in Adults Volume 2 - Dr. Damian Milton and Prof. Nicola Martin
Autism in a Decentered World - Alice Wexter
Behavior Support for Students with ASD: Practical Help for 10 Common Challenges - Debra Leach
Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively - Andrew Jahoda et al
Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalisation - Niklas Altermark
Making friends at work: Learning to make positive choices in social situations for people with autism - Saffron Gallup
Person-centred Active Support Training Pack (2nd Edition) - Julie Beadle-Brown, Bev Murphy and Jill Bradshaw
Sexuality and Learning Disabilities (2nd edition) - Dr Claire Bates
Successful Health Screening through Desensitisation for People with Learning Disabilities - Lisa Harrington and Sarah Walker
Forthcoming books!
28th February 2018
Safeguarding Adults: Key Themes and Issues - Gillian MacIntrye and Ailsa Stewart
21st March 2018
Difference Not Disorder: Understanding Autism Theory in Practice - Dr. Catherine Harve
15th April 2018
AUTISM UNCENSORED: Pulling Back the Curtain - Whitney Ellenby
30th April 2018
Autism in a Decentered World - Alice Wexler
13th June 2018
Social Survival: A Manual for those with Autism and Other Logical Thinkers - Amy Eleftheriades
21st June 2018
A Guide to Programs for Parenting Children with Autism Spectrum Disorder, Intellectual Disabilities or Developmental Disabilities: Evidence-Based Guidance for Professionals - John R Lutzker et al
21st June 2018
Successful Social Stories™ for Young Adults with Autism: Growing Up with Social Stories - Siobhan Timmins
1st July 2018
I Am Me: My Personal Journey with My Forty Plus Autistic Son - Marlene Ringler
1st July 2018
Belonging and Social Inclusion for People with Intellectual Disabilities - Iva Strnadova
22nd January 2019
Autism Spectrum Disorder Assessment in Schools - Laura Dilly and Christine Hall
18th April 2019
The Moulster and Griffiths Nursing Model: A Framework for Learning Disability Nursing Practice - Gwen Moulster et al
1st January 2020
An Introduction to Intellectual Disabilities - Mary Beirne-Smith and James R. Patton
4. Can You Understand It? team news
5. Easy read information
6. Events
7th - 8th March 2018, London
Mini PAS-ADD & ChA-PAS for mental health assessment of people with intellectual disabilities
7th - 8th March 2018
The Autism Professionals Annual Conference 2018
13th March 2018, London
Learning Disabilities: Fulfilling Potential and Supporting Better Lives
13th March 2018, Swansea
Mini PAS-ADD & ChA-PAS for mental health assessment of people with intellectual disabilities
7th - 8th March 2018
The Autism Professionals Annual Conference 2018
13th March 2018, London
Learning Disabilities: Fulfilling Potential and Supporting Better Lives
13th March 2018, Swansea
13th March 2018, Nottingham
Profound and Multiple Learning Disabilities in the Classroom
16th March 2018, Bristol
Bristol Annual Learning Disability Conference 2018
19th March 2018, London
Has Institutionalisation Ended? A Symposium
20th March 2018, London
Improving Care, Saving Lives - People with Learning Disabilites in Acute Care Settings
28th March 2018, Harrowgate
Personal Relationships and Sexuality and People with Learning Disabilities Awareness
11th April 2018, London
Positive Behaviour Support in Social Care Settings for Adults with Learning Disabilities
19th April 2018, Dublin
Positive Choices Conference 2018: 'Heroes and Champions deserve to live a life free from fear
20th April 2018, Dublin
Positive Commitment Conference
23rd April 2018, Cardiff
Practitioner Workshop: End of life care for people with learning disabilities
3rd - 4th May 2018, London
Preparing for Adulthood
12th - 16th May 2018, Belfast
Royal College of Nursing Congress
15th May 2018, London
Learning Disability Study Day 2018
7th - 8th June 2018, London
Jack Tizard Memorial Lecture and Conference – Expert analysis, new research: what works
12th June 2018, London
Best practice in supporting parents with learning disabilities
9 - 10 July 2018, Manchester
The Patient Safety Congress
28 November 2018, London
Learning Disability Today Exhibition and Learning Day
7. Guidance and resources
10 Tips to Calm Down a Child with autism in Meltdown
An Introduction to PBS
How to Teach Children with Autism to Indicate When They are in Pain
How to Write Social Stories for Children With Autism
Improving care for people with diabetes and a learning disability
Improving healthcare access for people with learning disabilities
Managing constipation for someone with a learning disability
People with learning disabilities: making reasonable adjustments
Preparing for a CQC inspection
Poo & You - Dimensions brief guide to constipation
Primary Care Resources for Adults on the Autism Spectrum and their Primary Care Providers
The ‘Autism in the Air’ video series Tips for helping autistic children travel by air!
8. Journals
Advances in Mental Health and Intellectual Disabilities
Autism Journal
Autism Parenting Magazine
British Journal of Learning DisabilitiesJournal of Applied Research in Intellectual Disabilities
Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
PMLD Link
Tizard Learning Disability Review
9. News concerning people with learning disabilities and/or autism
Art gives artist with Down Syndrome and Autism a voice - 25th Feb 2018, WHNT News
Autism charity accused of hiding horrific abuse at care home - 8th Feb, The Telegraph
Autism charity 'very sorry' for 'bullying culture' in care home - 9th February 2018, Care Home
Autism charity 'very sorry' for 'bullying culture' in care home - 9th February 2018, Care Home
Changing Places Campaigners Call On Government To Make Toilets Accessible For All Disabled People - 15th Feb 2018, Huffington Post
Councils struggling to cope with surge in child protection referrals - 17th Feb 2018, The Guardian
Glasgow Specsavers staff take autism awareness course - 21st Feb 2018, The National
Gym Staff Called Man with Autism “Stupid,” So He Taught Himself Law and Sued Them - The Autism Site
Having a learning disability is no bar to successful career, says chef - The Herald Scotland
Hundreds of people with learning disabilities could be missing out on essential health checks - 20th Feb 2018, Eastern Daily Press
Mencap Treat Me Well campaign launched to improve hospital care for vulnerable people - 17th Feb, 2018, Wirral Globe
‘No remorse’ doctor suspended over death of teenager in care home - 21st Feb 2018, The Northern Echo
Psychiatrist suspended for 12 months after man drowned in epileptic fit - 21st Feb 2018, The Guardian
River Island’s Latest Campaign Includes Kids With Disabilities - 20th Feb 2018, Shevolution
The NHS is failing people with learning disabilities – doctors didn’t explain my heart attack - 16th Feb 2018, I News
Time to implement the lessons learned - 19th Feb 2018, Nursing Times
Training could save lives of 1,200 learning disabled people – study - 15th Feb 2018, The Guardian
'What if they leave her sitting in the corner?' 2nd Feb 2018, BBC
10. Requests
Mencap have started a new campaign to transform how the NHS treats people with a learning disability in hospital - sign up and join the campaign here.
There is a petition to introduce mandatory training in autism for all NHS mental health services. Sign the petition here.
I am a third-year student at the University of Hull. As part of my course I am undertaking a research project and I would like to invite you to take part. The aim of the research is:
A Case Study to look at parents' views of the different factors that influence successful outcomes in post 16 mainstream provision for those with Special Educational Needs / Disabilities (SEND) - find out more here.
NHS England are planning to introduce a flagging system that will be placed on an individuals medical records. This flag will highlight what reasonable adjustments need to be made to support the individual. They want to hear what information you would like included and what you don't want. Complete the survey here. Closes on the 23rd March 2018.
In December 2017, Health Education England (HEE) published Facing the Facts, Shaping the Future, A health and care workforce strategy for England to 2027 and launched a consultation to inform the development of a health and care workforce strategy for publication this summer. Give your views here. Closes on 9th April 2018.
11. Research
Autism and ageing: loneliness and isolation - Dr Aoife Hickey and Dr Jason Crabtree
Better tools needed to diagnose depression in people with autism - Dr. Sarah Cassidy
Better tools needed to diagnose depression in people with autism - Dr. Sarah Cassidy
Clinical outcomes of staff training in positive behaviour support to reduce challenging behaviour in adults with intellectual disability: cluster randomised controlled trial - Angela Hassiotis et al
Experts: Suicidality Rates Among People with Autism Are “Worryingly High” - A. Stout
See you in April and happy spring!
No comments:
Post a Comment