Welcome.
The purpose of this bulletin is to keep you in touch
with news from the learning disability world in a monthly
digest. We hope to include information on the latest policy
and research along with easy read information that you may
find useful to pass on to the people you support. If you have
any requests for information or if you want to share
information with the Oxleas learning disability community
please send them to Steve Hardy or Jill Davies
with news from the learning disability world in a monthly
digest. We hope to include information on the latest policy
and research along with easy read information that you may
find useful to pass on to the people you support. If you have
any requests for information or if you want to share
information with the Oxleas learning disability community
please send them to Steve Hardy or Jill Davies
If you would like to receive an email alert about the future bulletins please email Steve Hardy
All links are underlined and are written in blue or grey. All links worked at the 1st November.
Story of the month!
Happy Birthday James!
Blogs
A real return on investment - investing in people with learning disabilities
Easy complacency or hard commitment?
Justice for Laughing Boy - Connor Sparrowhawk: A death by indifference - Book review
Katie...finding love through a dating agency
More people with learning disabilities should be on TV!
Paving the Way. Improving Services for People with Learning Disabilities and Autism at Alder Hey
The European Congress Mental Health in Intellectual Disability – September 2017 – Luxembourg
Us in a Bus. 5 Top Tips about Intensive Interaction
Using Funding Transfer Agreements to help people move out of hospital in Midlands and East
Women with learning disabilities are least likely to attend breast cancer screening – except in Cornwall
Books
Out now!
A Guide to Mental Health Issues in Girls and Young Women on the Autism SpectrumA Practical Guide to Happiness in Children and Teens on the Autism Spectrum: A Positive Psychology Approach
Handbook of Positive Psychology in Intellectual and Developmental Disabilities: Translating Research into Practice
Integrating Intensive Interaction: Developing Communication Practice in Services for Children and Adults with Severe Learning Difficulties, Profound and Multiple Learning Difficulties and Autism
Intellectual and Developmental Disabilities: A Roadmap for Families and Professionals
Justice For Laughing Boy: Connor Sparrowhawk - A Death By Indifference
My child has autism: A handbook for parents and professionals
Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities
Talking with Your Child about Their Autism Diagnosis: A Guide for Parents
Turning the Tables on Challenging Behaviour: Working with Children, Young People and Adults with Severe and Profound Learning Difficulties and/or Autistic Spectrum Disorders
Forthcoming books
12th November 2017 - Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively
21st November 2017 - Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalisation
28th November 2017 - Autism in a Decentered World
15th December 2017 - Behavior Support for Students with ASD: Practical Help for 10 Common Challenges
18th January 2018 - All About Me: A Step-by-Step Guide to Telling Children and Young People on the Autism Spectrum about their Diagnosis
14th February 2018 - Safeguarding Adults
21st February 2018 - Practical Strategies for Supporting Emotional Regulation in Students with Autism: Enhancing Engagement and Learning in the Classroom
21st March 2018 - Medical Aspects of Autism and Asperger Syndrome: A Guide for Parents and Professionals
27th April 2018 - Choosing Down Syndrome: Ethics and New Prenatal Testing Technologies
Can You Understand It! Team of Oxleas News
Oxleas’ learning disability editorial group, the ‘Can you
understand it? team was set up in 2009 and currently has 7
members representing Bexley, Bromley and Greenwich;
Chris, Dennis, James, John, Sarah C, Sarah L and Sunny.
They meet once a month and are supported by Oxleas’ staff,
Steve, Jessica and Sharon. They use an easy read checklist
to review information produced by staff and will make
recommendations to ensure the information is suitable for
people with learning disabilities.
Once a document has been approved by the Can you
understand it? team it gets uploaded on to the intranet. You
can see all the approved easy read documents by going to
the intranet/Documents and typing ‘easy read’ in the search
bar.
Every month we will be sharing with you what the team has
reviewed and what projects they are involved in.
Last month they approved a leaflet ‘Easy read information
about medicines’. This can be found on the intranet. They
have also been involved in writing a chapter for ‘Learning
Disability Today 5th Edition' and contributing to ‘Dignity in
healthcare for people with learning disabilities’ by the Royal
College of Nursing. They will also be visiting various nursing
teams in Oxleas to promote the ‘Bill of Rights’ following a
very confident presentation to the ALD Management Board
last month.
Easy Read
Money Matters: Living by yourself
Quality Checking Health Checks for People with Learning Disabilities: A way of finding out what is happening locally
Events
9th November 2017
Thames Community Learning Disability Nurses Forum is on at University of West London, Room PH806, Paragon House (Brentford site), Boston Manor Road, Brentford, Middlesex, TW8 9GA. Contact dorothy.kupara@uwl.ac.uk
17th November 2018
BILD's International Journal of Positive Behavioural Support 2017 Autumn Conference: PBS, trauma and mental ill health - London
21st November 2017
Puberty & Sexuality, & its impact on Autism & Learning Disabilities - London21st November 2017
5th December 2017
Supporting bereaved children and young people with additional needs - Saunderton
5th December 2017
Learning Disability England Annnual Conference - The Challenge of Change:
6th December 2017
Mental Health, Learning Disabilities and Dementia - Guildford
7th December 2017
It's My Life! Decisions, Capacity and EHC Plans - Interactive Webinar
14th December 2017
Better Mental Health: the Beyond Words approach - London
14th December 2017
London Learning Disability Mortality Reviewer Training - London
6th January 2018
Puberty & Sexuality, & its impact on Autism & Learning Disabilities - London
23rd January 2018
STOMP social care implementation conference: making your pledge real - Solihull
5th - 6th March 2018
Restraint Reduction Network Conference: Minimising inequalities in reducing restrictive practice - Birmingham
6th March 2018
Benchmarking & Good Practice in Learning Disability Services - London
13th March 2018
Learning Disabilities: Fulfilling Potential and Supporting Better Lives - London
20th April 2018
Positive Commitment Conference - Dublin
3rd - 4th May 2018
Preparing for Adulthood - London
Guidance
Care and support of older people with learning disabilities - NICE
Guidance for social care staff on how to help people with learning disabilities get better access to medical services to improve their health - Public Health England
Learning disabilities and behaviour that challenges: service design and delivery - NICE
Journals
Advances in Autism
Advances in Mental Health and Intellectual Disabilities
Autism Journal
British Journal of Learning Disabilities
Journal of Applied Research in Intellectual Disabilities
Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
Tizard Learning Disability Review
Free access articles
“…their opinions mean something”: Care staff's attitudes to health research involving people with intellectual disabilities. BILD Journal
When is a good outcome actually good? Autism Journal
Jobs
Clinical Lead/ Nurse for Transition, Band 8a - Oxleas NHS Foundation Trust
Graduate Assistant Inspectors - Hospitals (Acute and Mental Health) - CQC
Learning Disabilities Programme Lead at NDTi
News
'Autism Hour' helps cut shopping stress
Barber Lies on the Floor to Cut Hair for 6-Year-Old Boy With Autism: 'I Follow Him
Borderline personality disorder: 'One GP told me I wasn't ill, just a bad person'
Care home neglect led to death of autistic man 'shut away from the world'
Disabled 'losing out on jobs' over Access to Work cap
Disability no barrier to work for South Tyneside students
Freddie Highmore: 'The Good Doctor' is a good depiction of autism
Funding to help Shropshire people with learning disabilities, autism and mental health conditions
Girl with Down syndrome lands modelling contract after Face Book post goes viral
Hero stranger who helped young autistic boy on train after meltdown
'I don’t think employers see what disabled people can do'
"I'm too scared to leave my house because of the bullies": Charity releases emotional video on effects of bullying on disabled people
Ipswich Hospital launches new action group to improve care for patients with learning disabilities
Keen swimmer Holly heading to Paris as part of British team in European Championships
Kind-hearted woman set up dating agency to help people with learning disabilities find love
Learning disability Passport to better health services
Littlemore Mental Health Centre learning disability unit planned
Make autism about abilities not limits, says professor with condition
Man with learning disabilities died after he swallowed spoon in hospital
MPs urge action on lengthy wait for autism diagnosis
My son Connor Sparrowhawk died needlessly. Anger spurred me into action
Newcastle film helps change Irish disability laws
New figures reveal rise in hate crime against disabled people
New Nottingham safety app launched as UK marks hate crime campaign
New project uncovers hidden histories of people with learning disabilities
North Leeds cafe crowned region’s best
New Lancashire-wide disabled and vulnerable people programme launched
Now we have the tools to better understand why people with down syndrome develop dementia: Prof Tony Holland CBE
People with Autism Represent 'Untapped Reservoir of Talent'
People with challenging behaviour should only be hospitalised as 'last resort', says NICE
Psychiatric wards ‘last resort’ for disabled people with challenging behaviour
Risk that 'insufficient' number of learning disability nurses are being trained, warns HEE
Sheffield dating agency for adults with learning disabilities mark milestone anniversary
Stevenage pupil with learning disabilities wows people with his creative talent for decorative wreaths
Success stories: book celebrates achievements of people with learning disabilities
Tate Liverpool commits to becoming more autism friendly
University cancels learning disability course in wake of bursary removal
Woman with learning disability loses bid to keep children out of foster care
Woman with severe learning disability to get contraceptive patch against mother's wishes
Young boy with Down's syndrome hailed as inspiration as he hired to model in River Island's children's range
Young people from across Essex with learning disabilities take part in Try a Train event
Reports
Requests for information
Saba Salman is raising money through crowd funding to publish the book 'Made Possible' - more information at this link:
Made Possible: Essays on success, by high-achieving people with learning disabilities
Green Light Discussion Forum
Green Light Discussion Forum
The Green Light Toolkit helps mental health services respond effectively to people who have autism or learning disabilities in addition to mental health difficulties. If working on Green Light issues is part of your role, or if you are interested in this topic, the Green Light Discussion Forum is for you. The purpose of the Green Light Discussion Forum is to exchange ideas and solutions so that people receive good support. Send your email address to drew.llewellyn@ndti.org.uk and she will reply with a link called “accept Invitation” for you to click and register.
LDNurse.com are looking for new blogs! Read more.
Research
LDNurse.com are looking for new blogs! Read more.
Research
Adults with learning disabilities gain confidence boost from involvement in health research, study finds
Fathers with learning disabilities 'left out of support', study finds
Successful treatment for advanced stage testicular cancer in down syndrome patients
Resources
Fathers with learning disabilities
Improving the quality of Positive Behavioural Support (PBS): The standards for service providers and teams
Personal characteristics and skills required (learning disability nursing)
Supporting people with learning disabilities to have flu vaccinations
Women with learning disabilities are least likely to attend breast screening. Help change this
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