Tuesday, 22 May 2018

Oxleas Learning Disability Bulletin for May 2018

Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.

If you would like to receive an email alert about future bulletins please send an email to
Steve Hardy.

All links are written in blue or grey and worked on the 23rd May 2018. 

Stories of the month
Save the future of Learning Disability Nursing!

Please sign this petition and share it for others to sign.
Fund Universities to explore new routes into Learning Disability Nursing - 11th May, Sean Ledington
5 ways to attract people into learning disability nursing
Exclusive: Half of learning disability nursing courses 'considering closure' - 9th May, Nursing Times
Need for campaign to halt slide in learning disability student nurses, says network leader - 8th May, Nursing Times

The LeDeR report and news about it
You have probably seen the news this month and this greatly saddened me. Then on May 15th the Can You Understand It? team were presenting at Learning Disability Today event in London. You see the LeDeR presenter was on before us and left easy read versions of the report. Sunny (member of the CYUI?) asked me 'what's that about'? I softened the news but then he asked 'how old are people with learning disabilities when they die'? Do you tell him its 29 years earlier than the wider population? Do I just keep to the facts? Well I told him and the look on his face. So what have the government or NHS England done since this report was published? Well I haven't seen anything, have you? I would like to invite an MP or even Jeremy Hunt to come and explain to the 'Can You Understand It?' team why they die so much younger and why has nothing improved when we have about these facts for years or even decades............

The Learning Disabilities Mortality Review Annual Report 2017 - LeDeR Team
LeDeR Programme: Progress update  - 9th May, LeDeR Team
An open letter to Jeremy Hunt … - 13th May, Katherine RC
Are we really learning from preventable deaths? - Helen Cairn, Certitude
Enough is enough - making reasonable adjustments - Steve Hardy, ALDatOxleas
He wanted to live: Sister tells of anger over poor NHS care that 'robbed life' of brother who had learning difficulties - 4th May, ITV
Jeremy Hunt walks out of Learning Disabilities Mortality Review - 10th May, Nursing Notes
Learning disabilities mortality review finds 'very troubling' levels of abuse and gaps in care - 8th May, Care Appointments
One in eight learning disabled deaths affected by service failures, report finds - 11th May, Community Care

And to finish with a positive story of the month....


Boy with Asperger’s Gives the Natural History Museum a Lesson on Dinosaurs - Elizabeth Nelson, The Autism Site
5 Things I Want You to Know About Being an Autistic Person - Karli Slomka, The Mighty
10 Autism Parenting Experiences That Will Make You Say “Yup, That’s Basically My Life” - A. Stout, The Autism Site
Amidst The Noise This Mental Health Awareness Week, There’s One Voice You Might Not Hear - Prof Dame Sue Bailey
Are our assumptions about autism and AAC all wrong? - Kit Albrecht, Assistive Ware
Don't judge a book by its cover - Matthew Lager, TASH
Dual diagnosis: learning disability and mental health - Gemma Miller, Learning Disability Today
Everyone with ASD Is Different. But These 21 Experiences Are Familiar to Many Autism Families - A. Stout, The Autism Site
Girls with autism flying under the radar but new guidelines could help doctors with diagnosis - Emma Taylor, ABC
How Art Therapy Is Helping Children with Autism Express Themselves - Autism Baydarkh
“I’m Scared That I’m Going to Die Before Liam Can Live Independently:” This Dad’s Account Is So Raw - The Autism Site
It all made sense when we found out we were autistic - BBC
John and Sunny presentation to the Nursing Direcorate Makaton Friendly DJ Jay Entertainer - Jake Glennon, ALDatOxleas
Making our own music again - Chris Hatton
‘My Son Has Autism and a Purposeful Life’ - Autism Baydakh
Promoting the right to health for older people with learning disabilities - Ruth Northway, University of South Wales
Richard's story - ALDatOxleas
This Boy Is Graduating High School Even Though He Can Barely Write a Sentence - Elizabeth Nelson, The Autism Site
Keeping well event! - ResearchNet, ALDatOxleas
Why did I decide to become a Learning Disability nurse? - Lauretta Ofulue, University of Northampton
7 Things Not to Say to the Parent of a Child With Sensory Processing Disorder - Brian Bell, The Mighty

Autism in a Decentered World - Alice Wexter
Behavior Support for Students with ASD: Practical Help for 10 Common Challenges - Debra Leach
Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively - Andrew Jahoda et al
Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalis​ation - Niklas Altermark 
Difference Not Disorder: Understanding Autism Theory in Practice - Dr. Catherine HarveMaking friends at work: Learning to make positive choices in social situations for people with autism - Saffron Gallup
Person-centred Active Support Training Pack (2nd Edition) - Julie Beadle-Brown, Bev Murphy and Jill Bradshaw
Sexuality and Learning Disabilities (2nd edition) - Dr Claire Bates
Successful Health Screening through Desensitisation for People with Learning Disabilities - Lisa Harrington and Sarah Walker Safeguarding Adults: Key Themes and Issues - Gillian MacIntrye and Ailsa Stewart

Forthcoming books
13th June 2018
Social Survival: A Manual for those with Autism and Other Logical Thinkers - Amy Eleftheriades

21st June 2018
A Guide to Programs for Parenting Children with Autism Spectrum Disorder, Intellectual Disabilities or Developmental Disabilities: Evidence-Based Guidance for Professionals - John R Lutzker et al

21st June 2018
Successful Social Stories™ for Young Adults with Autism: Growing Up with Social Stories - Siobhan Timmins

1st July 2018
I Am Me: My Personal Journey with My Forty Plus Autistic Son - Marlene Ringler

1st July 2018
Belonging and Social Inclusion for People with Intellectual Disabilities - Iva Strnadova

22nd January 2019
Autism Spectrum Disorder Assessment in Schools -  Laura Dilly and  Christine Hall

18th April 2019
The Moulster and Griffiths Nursing Model: A Framework for Learning Disability Nursing Practice - Gwen Moulster et al

1st January 2020
An Introduction to Intellectual Disabilities - Mary Beirne-Smith and James R. Patton

Can You Understand It! Team News

The Can You Understand It? team are delighted that they wrote the first chapter for 'Learning Disability Today' - 4th edition! The chapter is entitled 'What does having a learning mean to us?'. Buy the book here.


NEW! Autism Awareness Diploma Course - Centre of Excellence
NEW! Transforming learning disability services - Online course from NHS England

MSc Ageing Health & Wellbeing in Intellectual Disability - Trinity College Dublin
MSc Developmental Disorders - University of Nottingham
MSc Disability Studies: Inclusive Theory and Research - University of Bristol
MSc/PDip Intellectual Disability Nursing - AIT, Ireland
MSc in Intellectual Disability Nursing Practice - DCU Ireland
MSc Psychology and Learning Disability - University of Portsmouth
PCert, PDip, MA Intellectual and Developmental Disabilities - The Tizard Centre, University of Kent
PGDip/MSc Adults with Learning Disabilities who have Significant and Complex Needs – Distance Learning - St Andrews University

Easy Read

A family at work - Books Beyond Words

A Good Day's Work - Books Beyond Words

Choosing My First Job - Books Beyond Words

Glory Wants a Job - Books Beyond Words


23rd May 2018, Dublin, Ireland
Enacting advocacy in intellectual disability nursing: developing guidelines for practice

24th May 2018, Niagara Falls, USA
30 Years of Awareness- 2018 Developmental Disability Awareness Day Conference

7th - 8th June 2018, London
Jack Tizard Memorial Lecture and Conference – Expert analysis, new research: what works

12th June 2018, London
Best practice in supporting parents with learning disabilities

21st June 2018, Crawley

Kent, Surrey & Sussex Learning Disability Community of Practice conference

22nd June 2018, Cambridge
Sensory Lexicon

29th June 2018, Manchester
Sensory Lexicon

5th - 6th July 2018, London
The Super Sensory Lexicon

9 - 10 July 2018, Manchester
The Patient Safety Congress 

13th July 2018, Nottingham
Sensory Lexicon

28 November 2018, London
Learning Disability Today Exhibition and Learning Day

Guidance and resources

Brilliant Site! People with learning disabilities: making reasonable adjustments - Gov.UK

Autism guidance for health professionals - National Autistic Society

Making reasonable adjustments to postural care services - Gov.UK

Married – but without the capacity to consent to sex? - 21st April, Community Living

Postural care and people with learning disabilities  - Gov.UK

Tips for Tackling Toothbrushing in Children With Oral Sensitivities - The Mighty

Advances in Autism
Advances in Mental Health and Intellectual Disabilities
Autism Journal
Autism Parenting Magazine 
British Journal of Learning Disabilities

Journal of Applied Research in Intellectual Disabilities
Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
Tizard Learning Disability Review

News concerning people with learning disabilities and/or autism

10 Percent of Walgreens’ Workforce Is Now Employees with Disabilities - The Autism Site

Alaska will no longer allow workers with disabilities to be paid less than minimum wage - 20th Feb, Think Progress

Autistic man Ashley Peacock remains locked up a year on  - New Zealand Herald

Coffee shop hiring people with disabilities is ‘human rights movement,' owner says - 7th April, Fox 29

Disability & services give voice to people with learning disabilities - 9th April, Options, Thailand

Disabled boy sent home in agonising pain as Bristol Children's Hospital had 'wrong bed' - 18th May, Bristol Live

Disability hate crime reports surge but victims may not even be aware it is an offence - 9th April, Bristol Live

Employable Me: the ABC's brutally honest portrait of job hunting with a disability - 3rd April, The Guardian

Gary Numan: ‘Eye contact is something I find incredibly difficult’ - 28th April, The Guardian

Hollyoaks casts actress with autism Talia Grant in major role - 23rd April, Radio Times

How inclusive is Croydon? An interview with Club Soda- an organisation run by people with learning disabilities- Aditi Rammohan Croydon High School - 30th April, Local London

Judge gives Leeds NHS bosses go-ahead for C-section on pregnant woman with learning disabilities - 10th May, Yorkshire Post

Leeds museum’s new sculpture is inspired by industrial past - 30th April, Yorkshire Evening Post 

Leicestershire parents create brilliant video to Pharrell Williams' Happy for National Autism Awareness Day - 7th April, Leicester Mercury

Man died after choking on sausage and mash at Sheppey care home - 2nd May, Kent Live

Mum says autistic son was thrown off bus for not looking like his photo ID - 15th May, Gazette Live

People growing older with learning disabilities should get regular health checks, says NICE - 11th April, NICE

Plymouth people with autism losing their benefits because of new test - 10th April, The Herald

RNIB and subsidiary under investigation over abuse allegation - 5th April, The Guardian

Scheme helps people with learning disabilities to become independent travellers - 16th May, Eastern Daily Press

'Sesame Street' theme park becomes world's first to get certified autism designation - 3rd April, Cincinnati.com

'Sarah is part of my family’: the house-sharing scheme for vulnerable adults - 18th May, The Guardian

Sport IS for all...and disability is just part of the challenge - 1st April, Daily Gazette

Stay Up Late’s call to business -  9th April, The Argus

What life is really like for families living with autism in Liverpool - 8th April, Echo

Voter ID Reforms Could Take Away My Vote - 3rd May, HuffPost


Hidden in plain sight: dementia and learning disability - The Foundation for People with Learning Disabilities

Ordinary houses in ordinary streets: Independent social care and housing solutions for people with learning disabilities  - Northern Ireland Mencap


Autism advocacy and research misses the mark if autistic people are left out

Autism and the criminal justice system research to be presented at international conference - University of Cumbria

Cognitive behavioral therapy can improve emotion regulation in children with autism - York University

Here's how personal assistants can support decision making - Noraj Fry Centre

How to better safeguard people with learning disabilities from forced marriage - University of Nottingham

New research shows misperceptions of autism abound in community - Australian National University   

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