Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.
If you would like to receive an email alert about future bulletins please send an email to Steve Hardy.
All links are written in blue or grey and worked on the 25th October 2018.
Stories of the month!
Hopefully you have all heard the name 'Oliver McGowan' and how he sadly died in hospital in November 2016. But his brave mother has battled since this tragic event to make sure all NHS staff receive adequate training about autistic people and those with learning disabilities. Well done Paula! Here's a selection of news articles following the announcement made in Parliament.
Watch the debate and Oliver's story from Parliament
Government confirms plans to make sure all health staff get autism training (23 October 2018)
A mother's campaign for autism care equality for all
Activist of the Year Awards 2018 - Paula McGowan
Government agrees to act on mum's campaign to change autism treatment
Learning Disability Pride - 15–21 June 2019
This Morning viewers in tears as autistic superfan who learnt to speak watching the show hugs his heroes
Tesco’s kind gesture to boy with Down’s syndrome after seeing dad struggle
Transforming Care - Is it Working? - Radio 4
Festival organised in honour of disabled teenager
Theatre calls for learning disability Oscar winner
Stopping over medication of people with a learning disability, autism or both (STOMP)
Models With Down Syndrome Shine at Celebrity Filled Event
Blogs, Vlogs and Podcasts
28 Ways People With Down Syndrome Prove Doctors Wrong
Building the right home
Disability in Africa: 'I'm no longer ashamed of my disabled daughter'
Helping people to find the right home with the right support
Helping prevent over-medication
'I was diagnosed with autism at 32', says Cardiff mum
Including My Son With Down Syndrome Benefits Everyone in the Classroom
It's good to talk if you're not happy
possABILITY: A learning disability documentary
Positive outcomes for Bexley’s Learning Disability Clozapine Clinic
Restraints, assaults and self-harm in inpatient units
Sepsis: a personal story
Shopping through the eyes of someone with autism
Teachers are learning on the job how to manage students with autism
The 23-year-old busting myths about Down's syndrome
The voices of people with disabilities must be heard
Time for a change
When I Hear What My Son With Autism Doesn't Say
Books of the month!
With a chapter by our very own Dr Sandra Baum
Baum, S. & Alexander, N. (2018). Pregnancy, contraception and women choosing to have a child.
In C. Bates, (Ed), (2018) . Sexuality and Learning Disabilities: Practical Approaches to Providing Positive Support. Brighton: Pavilion.
Mental Health in Intellectual Disabilities 5th edition
With chapters by our very own Dr Andrew Flynn, Dr Robert Winterhalder and Steve Hardy
Courses
LeDeR e-learning reviewer training platform is now live
Talking End of Life with people with intellectual disabilities - on line course offered by The University of Sydney
Easy read
Events
30th October 2018
Women and Girls Conference 2018, National Autistic Society
7th November 2018, Stirling
Post-diagnostic support for people with a learning disability and dementia
7th November 2018, London
Launch of the Greater London Learning Disabilities Community of Practice
26th November 2018, London
London Learning Disability Mortality Reviewer (LeDeR) Training
28th November 2018, London
Learning Disability Today Exhibition
19th March 2019 - Manchester
Learning Disabilities and Autism: Promoting Positive Outcomes
23rd - 25th May 2019, Barcelona, Spain
European Congress on Mental Health in Intellectual Disabilty
Guidance and resources
10 Tips to Calm Down a Child with autism in Meltdown
Justice for LB Toolkit
Medication Pathway
NICE: Decision-making and mental capacity
Ordinary residence guide: determining local authority responsibilities under the Care Act and the Mental Health Act
Suspicion of sepsis dashboard
Understanding Autism, Aggression, and Self-Injury: Medical Approaches and Best Support Practices
Video: Sepsis and people with learning disabilities
News about people with learning disabilities and autistic people
Autistic boy 'constructively excluded' from school - 16th October, BBC
Autistic woman ‘pimped out’ in care scandal - 18th October, The Times
Cafe providing disabled people with job opportunities, Cafe Dome in Brighton Hill, 'shocked' by 'disgusting' graffiti - 2nd October, Gazette
Consultation in January to decide future of day centre for adults with learning disabilities in Moray - 11th October, The Press and Journal
Croatia: End Confinement of People with Disabilities - 10th October, HRW
Danish government to give voting rights to people with learning disabilities - 16th October, The Local dk
Demand for long term care rises while number of people receiving help falls NHS figures reveal - 23rd October, ITV
Family judge goes public to BBC on litigant in person headache - 16th October, The Law Society Gazette
'Families of people with learning disabilities have been let down' - Fearon - 16th October, Sinn Fein
Father beats legal bid to silence him over autistic girl in hospital ‘cell’ - 13th October, The Times
Home to school transport and learning disability services targeted in Northamptonshire County Council savings - 2nd October, Northampton Chronicle
Inquest opens into death of man, 37, who died at Bradwell care home - 16th October, Eastern Daily Press
Learning disabilities care 'far from home' - 2nd October, BBC
Mocked Everton fan with Down's syndrome meets players - 29th September, BBC
Muckamore Abbey hospital a 'high risk' facility for patients with a 'culture of silence' on abuse allegations - 24th October, The Irish News
Mum of son with learning disability 'shocked' after Whippet bus he relies on is cancelled - 10th October, Cambridgeshire Live
Musical not just adapted for children with autism, it was designed just for them - 4th October, ABC
New social work model: ‘You can take longer view, not just stick a plaster on issues’ - 11th October, The Guardian
NHS learning disability nursing workforce hits record low - 27th September, Nursing Times
One in four disabled people don’t use public transport due to negative attitudes from other passengers, new research - 10th October, The Independent
Paddy and Christine McGuinness to launch reality show on life as parents to kids with autism - 7th October, Metro
Physical restraint used on 50% more NHS patients with learning disabilities - 2nd October, The Guardian
Pledge broken over care for the vulnerable - 3rd October, The Time
Revealed: National plans to transform learning disabilities care branded as 'failing' by nurses - 24th October, Nursing Times
Shocking report reveals what life is like for people with learning difficulties in Cumbria - 3rd October, News and Star
Southern Trust underspends on adults with learning disabilities - 16th October, BBC
This autism dad has a warning for anti-vaxxers - 16th October, Vox
Use Of Restraints Widespread On NHS Patients With Learning Difficulties - 2nd October, Human Rights News
Video shows off-duty Chicago police officer shooting teenager with autism – video - 17th October, The Guardian
Woman found locked up in London hospital is brought to Plymouth - 6th October, Plymouth Live
Woman with learning difficulties won't be told about covert contraception, judge rules - 19th October, The Independent
Reports
CQC The state of care
Requests
We are going to set up an on line survey in support of 'Oliver McGowan's Mandatory Training'. It will be short and to the point. Watch this space!
Screening Tool May Identify Root Of Autism Behavior Problems
Siblings of children with autism have social, emotional problems
Some ‘autism genes’ show stronger ties to related conditions
Happy Halloween and see you in November!
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