Monday, 4 December 2017

Oxleas Learning Disability Bulletin for December 2017






Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.


If you would like to receive an email alert about future bulletins please email to Steve Hardy.


All links are written in blue or grey and worked on the 1st December 2017.


Contents
1. Stories of the month
2. Blogs
3. Books - new and forthcoming
4. Can you understand it? team of Oxleas news
5. Easy read information
6. Events
7. Guidance
8. Journals
9. News concerning people with learning disabilities and/or autism
11. Reports
12. Research
13. Focus - portrayal of people with learning disabilities and/or autism in movies

 
1. Stories of the month!
Artist with learning disabilities to display his work at exhibition in Scunthorpe - Adam Garlick is an artist from Scunthorpe is displaying his work at an exhibition in the town centre.

 


Call for all MPs to undertake mandatory disability awareness training - An MP from Ealing has called on learning disability awareness training to become mandatory for all elected representatives after her "eyes were opened".




Jeremy The Dud - Official Trailer - Jeremy The Dud is a comedy set in a world where everyone has a disability, and those who don't are - launched on Nov 2nd

 

 Why it's hard to switch tasks - a comic strip by a talented artist who has autism

 


 

2. Blogs


Actors with a learning disability training health professionals in clinical simulation - Karina Marshall-Tate on LDNurse.com
Challenging services to change - Jonathon Senker on NICE
Experiences of co-facilitating: ‘Feelings Space’ an intervention group within an inpatient unit - Ashley Dunira on LDNurse.com
How to tell your child they have autism - Rachel Dundon on Jessica Kingsley
Improving health – Andrew’s story - Danielle Adams and Dr Indermeet Sawhney on NHS England
Reflections On Being Thankful As An Autism Parent - Angela Ashton Smith on Huff Post
The Communications Passport: Giving a voice to the voiceless - Karen Sanger on BILD
We Cannot Continue to Overlook the Suicide Rate of Autistic Adults - Gina Guarnere on The Mighty
What an Inspiration! Daryl Hannah Opens Up About Her Autism - C. Dixon on The Autism Site
Why Are Sleep Issues So Common Among People with Autism? - Autism  



 

3. Books - new and forthcoming




 Out now!
Autism and Intellectual Disability in Adults Volume 2
Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively


Forthcoming books

15th December 2017 - Behavior Support for Students with ASD: Practical Help for 10 Common Challenges
 
 4. Can you understand it? team of Oxleas news


This month the team reviewed and approved an easy read crisis support plan which has been developed by Jill Davies and Lindsay Gordon (Bromley Learning Disability Team). This is in addition to an easy read mental health care plan that was approved last month. These templates are available via the Easy Read Resources folder under 'Easy read care plans'.

 
The team also reviewed a Transition questionnaire and gave some valuable feedback to Victoria Saffin who joined the team meeting. An easy read version will be shared with managers attending the CQUIN meeting in January.

 
Recent easy read leaflets now available on the intranet are:
  • Bromley Learning Disability Epilepsy Service
  • Keep Healthy Clinic
  • What is cancer?
  • Changes that can happen at the end of life
  • Stay healthy - drink less alcohol
  • Stay healthy - be safe in the sun
Just type 'easy read' in the search box.


Other projects
Sunny recently spoke to Preceptorship nurses about his learning disability. Feedback was extremely positive:
'Really brilliant that Sunny came to talk to us'
'Understanding the importance of using easy read, pictures and short sentences'
'Service user contribution was good'.

 

 5. Easy read information





Domestic abuse - various resources from Beyond Words



 
6. Events


5th December 2017
Supporting Parents with Learning Disabilities - Glasgow 
5th December 2017
5th December 2017
6th December 2017
7th December 2017
14th December 2017
14th December 2017
6th January 2018
22nd January 2018
23rd January 2018
5th - 6th March 2018
6th March 2018
7th - 8th March 2018
13th March 2018
20th April 2018
3rd - 4th May 2018


 

 
7. Guidance and Resources


10 things the NHS must do about mental health and autism - Nov 29th, Autistica
Annual health checks - NHS England
Autism Helpsheets - Options
Autism Resources for Parents – The Ultimate New Guide
Better health for people with learning disabilities - March 2017, NDTi & VODG
My Communication Passport
Reasonable adjustments for people with a learning disability who have diabetes - July 2017, NHS Right Care Pathway
Personal Independence Payment (PIP) assessment guidance updated - Nov 2nd, Department for Work and Pensions




 
8. Journals



Advances in Autism
Advances in Mental Health and Intellectual Disabilities
Autism Journal
Autism Parenting Magazine 
British Journal of Learning Disabilities

Journal of Applied Research in Intellectual Disabilities
Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
PMLD Link
Tizard Learning Disability Review





9. News concerning people with learning disabilities and/or autism
10 things the NHS must do about mental health and autism
A fun night for the LGBT community with Meet ‘N’ Match in Chorley - Nov 17th, Lancashire Post


10-Year-Old Boy with Autism Singing ‘Imagine’ Will Give You Chills - Nov 10th, Alice@97.3


Bath GPs urge people with learning difficulties to have flu jab - Nov 21st, Bath Chronicle


Bill to limit the use of physical restraint passes important hurdle   - Nov 3rd, National Autistic Society


Boy with autism tackles his first ever five-kilometre run for charity - Nov 25th, Scunthorpe Telegraph


Campaign for disabled toilets in Whitehill and Bordon launched - Nov 26th, Petersfield Post


Concern for learning disability nursing as some courses ‘less than half full’  - Nov 17th, Nursing Times


Connor Sparrowhawk: How one boy’s death in NHS care inspired a movement for justice - Nov 29th, Open Democracy


Cumbrian arts organisation gives with learning disabilities a platform for their talent  - Nov 2017, News and Star


Dad Paddy McGuinness says autistic twins are loving school and thanks fans for their support - Nov 4th, Daily Mirror




Death in Sussex Health Care - Nov 10th, Learning Disability England




Disabled adults are sent to old people’s homes - Nov 14th, The Times


Elections in UK becoming increasingly inaccessible to disabled people - Nov 13th, Public Sector Executive


Why those with autism shine in ICT - Nov 9th, Information Age


Focus given to treating diabetes in those with learning disabilities - Nov 24th, Diabetes.co.uk


For children with autism, haircuts can be traumatic. Here’s how one barber changed that - Nov 2nd, The Washington Post


The government has launched new plans to transform disability employment over the next ten years - Nov 29th, Gov.UK


Government to consider named worker for disabled children in inpatient care - Nov 9th, Community Care


Ground-breaking autism academy is launched in the North East - Nov 13th, Chronicle Live


Health bosses say “the best bed is your own bed” after cutting more than 200 hospital beds across Devon - Nov 23rd, Devon Live


Hospital wins three national awards for ground-breaking work - Nov 24th, Great Yarmouth Mercury


How one family finally came out of the 'autism closet'  - Nov 2nd, Today


How strangers on Twitter brought Christmas joy to this autistic teenager - Nov 15th, Belfast Telegraph


How we achieved an outstanding CQC rating - Nov 13th, Learning Disability Today


'I was nervous but I nailed it': DJs with disabilities take to the air - Nov 16th, The Guardian


Inspectors impressed by Kettering service’s level of care - Nov 18th, Northamptonshire Telegraph


Learning disability misconceptions 'blocking employment' - Nov 27th, BBC Wales


Long Island Boy With Autism Has Christmas Wish Come True - CBS New York


Man Sees “Car Thief” In His Truck, But As He Walks Closer His Heart Softens - Oct 24th, Inspire More


Manchester People First Hold a Rave for those with Learning Disabilities - Nov 14th, Quay News


Mental health trusts restrain patients 'every 10 minutes' Nov 16th, BBC


Meet the young autistic boy from Glasgow transformed by dancing - Nov 2nd, Glasgow Live


Mencap dismayed by Government indecision on funding for sleep-ins - Nov 1st, Mencap


Mental health and learning disability detention applications 'at highest level on record' - Nov 2nd, Care Appointments


More homes to help adults with complex learning difficulties and autism in Bolton - Nov 25th, The Bolton News 


Mum reveals what having a child with autism is really like - and says it is far more challenging than BBC's The A Word - Nov 11th, Daily Mirror


New project launched to help people with learning disabilities have more control over their lives - Nov 21st, Derry Now  


New sleep-in shift pay compliance scheme launched to support social care sector and identify back pay for workers - Nov 1st, Department of Health, HM Revenue & Custom, Gov.UK


NHS England workforce planning 'not fit for purpose', says report - Oct 31st, The Guardian


People urged to have say on future of Norfolk services for those with learning disabilities - Nov 16th, Eastern Daily Express  


People with disabilities have the right to good health too - Nov 27th, The Guardian


People with learning disabilities launch campaign to break down barriers in Glasgow communities - Nov 20th, Glasgow Evening Times


People with learning disabilities 'less likely to have care errors picked up' - Nov 3rd, Health Service Journal



Program simulates flying on a plane to ease stress for children with autism - Nov 5th, Fox Boston


Psychiatrist showed 'no remorse' after death of teenager, tribunal finds - Nov 12th, The Guardian


Ray James: ‘I want those still in care to tell their truths to people like me’ - Nov 21st, The Guardian


Reaching out to tackle loneliness and isolation - Nov 26th, Newark Advertiser


Smart speaker technology trial to aid supported living - Nov 19th, BBC


Social care charities announce merger - Nov 1st, Third Sector


St Enoch Centre to hold ‘quiet sessions’ at Santa’s Grotto for children with autism - Glasgow Live


Stepping Stones NI helping people with learning difficulties get into work - Nov 20th, The Irish News


The A Word is back on BBC1 - but what are the signs of autism? - Nov 8th, Birmingham Mail


'The Good Doctor’ Features Actor With Autism for an Insightful Episode That Highlights the Need for More Inclusion - Nov 13th, Indie Wire


The number of disabled children seeking counselling for bullying and mental health issues has surged in the last year - Nov 23rd, Kent Live


This group for autistic LGBT people is creating new conversations in Toronto  - Nov 11th, Xtra


This is how some disabled people were stopped from voting in the general election - Nov 9th, The Independent


This Morning viewers 'heartbroken' as devastated dad reveals pain of six-year-old autistic son not being invited to parties - Nov 9th, Daily Mirror


Touching moment young man with learning disabilities gets behind the wheel for the first time - Nov 24th, Daily Mail


Volunteers bring new life to garden for people with learning disabilities - Nov 2017, HFT


WATCH: Heartwarming moment boy helps little girl with Down Syndrome to overcome fear - Nov 8th, Independent.Ie


Why Down's syndrome is a 'gift' to medical research - BBC
Why is the government waging a war against disabled people? - Nov 23rd, The Guardian


Woman Becomes First With Down’s Syndrome To Compete For Miss USA -  Nov 27th, UniLad


Youngsters from Little Gate Farm project filmed for Children in Need - Nov 9th, Hastings & St Leonards Observer  


Young people with learning disabilities helped in to work - Nov 21st, Public Now

 
10. Reports
Good intentions, good enough? A review of the experiences and outcomes of children and young people in residential special schools and colleges - Nov 2017, Department of Further Education


Learning disability nursing meeting report - Nov 16th, Council of Deans of Health


Complaints, comments and feedback: making it more accessible - Nov 2017, NHS England


One in 10 teenage girls referred to mental health and learning disability services in past year, finds NHS report - Nov 2017, NHS 


Outcomes for People with Learning Disabilities: Opportunities and Challenges for Housing - Nov 2017, Scottish Commission for Learning Disability


Residential special schools and colleges: support for children - Nov 6th, Department of Education, Gov.UK


Trust research shows animals have health benefits for adults with learning disabilities - Nov 30th, Southern Health and Social Care Trust  

 

  
11. Research

ANOTHER increase in children born with developmental disabilities, new CDC report reveals after years of climbing rates - Centre for Diseases Control and Prevention


 
Autism and the smell of fear - Weizmann Institute of Science

 
In autism, too many brain connections may be at root of condition - Washington University School of Medicine

 
Identifying people with a learning disability: an advanced search for general practice - British Journal of General Practice

 
Melatonin gains momentum as sleep aid for people with autism - Spectrum

 
Mothers of Teens With Autism Report Higher Levels of Stress, Though Optimism Can Be a Buffer - University of California


Psychological Depression Interventions in Adults With Intellectual Disabilities - Lancet




SEND pupils ‘pushed out’ of mainstream schools, new data shows - National Association of Special Education Needs

 
 
 
12. Focus - portrayal of people with learning disabilities and/or autism in movies



 
I Am Sam

 
Life, Animated
 


My Feral Heart

 
The Ringer

 
What's Eating Gilbert Grape

 
Where Hope Grows


Have a wonderful Christmas and we will see you in 2018!








Wednesday, 1 November 2017

Oxleas Learning Disability Bulletin for November 2017

 

Welcome. The purpose of this bulletin is to keep you in touch


with news from the learning disability world in a monthly


digest. We hope to include information on the latest policy


and research along with easy read information that you may


find useful to pass on to the people you support. If you have


any requests for information or if you want to share


information with the Oxleas learning disability community


please send them to Steve Hardy or Jill Davies

If you would like to receive an email alert about the future bulletins please email Steve Hardy
All links are underlined and are written in blue or grey. All links worked at the 1st November.


Story of the month!

Happy Birthday James!

Blogs




A real return on investment - investing in people with learning disabilities
Easy complacency or hard commitment?
Justice for Laughing Boy - Connor Sparrowhawk: A death by indifference - Book review
Katie...finding love through a dating agency
More people with learning disabilities should be on TV!
Paving the Way. Improving Services for People with Learning Disabilities and Autism at Alder Hey
The European Congress Mental Health in Intellectual Disability – September 2017 – Luxembourg
Us in a Bus. 5 Top Tips about Intensive Interaction
Using Funding Transfer Agreements to help people move out of hospital in Midlands and East
Women with learning disabilities are least likely to attend breast cancer screening – except in Cornwall


Books


Out now!
A Guide to Mental Health Issues in Girls and Young Women on the Autism Spectrum
A Practical Guide to Happiness in Children and Teens on the Autism Spectrum: A Positive Psychology Approach
Handbook of Positive Psychology in Intellectual and Developmental Disabilities: Translating Research into Practice
Integrating Intensive Interaction: Developing Communication Practice in Services for Children and Adults with Severe Learning Difficulties, Profound and Multiple Learning Difficulties and Autism
Intellectual and Developmental Disabilities: A Roadmap for Families and Professionals
Justice For Laughing Boy: Connor Sparrowhawk - A Death By Indifference
My child has autism: A handbook for parents and professionals
Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities
Talking with Your Child about Their Autism Diagnosis: A Guide for Parents
Turning the Tables on Challenging Behaviour: Working with Children, Young People and Adults with Severe and Profound Learning Difficulties and/or Autistic Spectrum Disorders


Forthcoming books
12th November 2017 - Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively
21st November 2017 - Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalis​ation
28th November 2017 - Autism in a Decentered World
15th December 2017 - Behavior Support for Students with ASD: Practical Help for 10 Common Challenges
18th January 2018 - All About Me: A Step-by-Step Guide to Telling Children and Young People on the Autism Spectrum about their Diagnosis
14th February 2018 - Safeguarding Adults
21st February 2018 - Practical Strategies for Supporting Emotional Regulation in Students with Autism: Enhancing Engagement and Learning in the Classroom
21st March 2018 - Medical Aspects of Autism and Asperger Syndrome: A Guide for Parents and Professionals
27th April 2018 - Choosing Down Syndrome: Ethics and New Prenatal Testing Technologies


Can You Understand It! Team of Oxleas News










Oxleas’ learning disability editorial group, the ‘Can you


understand it? team was set up in 2009 and currently has 7


members representing Bexley, Bromley and Greenwich;


Chris, Dennis, James, John, Sarah C, Sarah L and Sunny.


They meet once a month and are supported by Oxleas’ staff,


Steve, Jessica and Sharon. They use an easy read checklist


to review information produced by staff and will make


recommendations to ensure the information is suitable for


people with learning disabilities.


Once a document has been approved by the Can you


understand it? team it gets uploaded on to the intranet. You


can see all the approved easy read documents by going to


the intranet/Documents and typing ‘easy read’ in the search


bar.


Every month we will be sharing with you what the team has


reviewed and what projects they are involved in.


Last month they approved a leaflet ‘Easy read information


about medicines’. This can be found on the intranet. They


have also been involved in writing a chapter for ‘Learning


Disability Today 5th Edition' and contributing to ‘Dignity in


healthcare for people with learning disabilities’ by the Royal


College of Nursing. They will also be visiting various nursing


teams in Oxleas to promote the ‘Bill of Rights’ following a


very confident presentation to the ALD Management Board


last month.

If you have any information that you are producing for people with learning disabilities please send it to Sharon.Rodrigues@nhs.net so that the ‘Can you understand? team can ensure it is accessible for people with learning disabilities.


Easy Read





Bowel scope screening: An easy guide
Money Matters: Living by yourself
Quality Checking Health Checks for People with Learning Disabilities: A way of finding out what is happening locally


Events







9th November 2017
Thames Community Learning Disability Nurses Forum is on at University of West London, Room PH806, Paragon House (Brentford site), Boston Manor Road, Brentford, Middlesex, TW8 9GA. Contact  dorothy.kupara@uwl.ac.uk
17th November 2018
Puberty & Sexuality, & its impact on Autism & Learning Disabilities - London
5th December 2017
Supporting bereaved children and young people with additional needs - Saunderton
5th December 2017
Learning Disability England Annnual Conference - The Challenge of Change:
6th December 2017
Mental Health, Learning Disabilities and Dementia - Guildford
7th December 2017
It's My Life! Decisions, Capacity and EHC Plans - Interactive Webinar
14th December 2017
Better Mental Health: the Beyond Words approach - London
14th December 2017
London Learning Disability Mortality Reviewer Training - London
6th January 2018
Puberty & Sexuality, & its impact on Autism & Learning Disabilities - London
23rd January 2018
STOMP social care implementation conference: making your pledge real - Solihull
5th - 6th March 2018
Restraint Reduction Network Conference: Minimising inequalities in reducing restrictive practice - Birmingham
6th March 2018
Benchmarking & Good Practice in Learning Disability Services - London
13th March 2018
Learning Disabilities: Fulfilling Potential and Supporting Better Lives - London  
20th April 2018
Positive Commitment Conference - Dublin
3rd - 4th May 2018
Preparing for Adulthood - London


Guidance







Care and support of older people with learning disabilities - NICE
Guidance for social care staff on how to help people with learning disabilities get better access to medical services to improve their health - Public Health England
Learning disabilities and behaviour that challenges: service design and delivery - NICE


Journals




Advances in Autism
Advances in Mental Health and Intellectual Disabilities
Autism Journal
British Journal of Learning Disabilities
Journal of Applied Research in Intellectual Disabilities
Journal of Intellectual Disabilities and Offending Behaviour
Journal of Intellectual Disability Research
Journal of Policy and Practice in Intellectual Disabilities
Learning Disability Practice
Tizard Learning Disability Review


Free access articles


“…their opinions mean something”: Care staff's attitudes to health research involving people with intellectual disabilities. BILD Journal
When is a good outcome actually good? Autism Journal


Jobs




Clinical Lead/ Nurse for Transition, Band 8a - Oxleas NHS Foundation Trust
Graduate Assistant Inspectors - Hospitals (Acute and Mental Health) - CQC
Learning Disabilities Programme Lead at NDTi


News



'Autism Hour' helps cut shopping stress
Barber Lies on the Floor to Cut Hair for 6-Year-Old Boy With Autism: 'I Follow Him
Borderline personality disorder: 'One GP told me I wasn't ill, just a bad person'
Care home neglect led to death of autistic man 'shut away from the world'
Disabled 'losing out on jobs' over Access to Work cap
Disability no barrier to work for South Tyneside students
Freddie Highmore: 'The Good Doctor' is a good depiction of autism
Funding to help Shropshire people with learning disabilities, autism and mental health conditions
Girl with Down syndrome lands modelling contract after Face Book post goes viral
Hero stranger who helped young autistic boy on train after meltdown
'I don’t think employers see what disabled people can do'
"I'm too scared to leave my house because of the bullies": Charity releases emotional video on effects of bullying on disabled people
Ipswich Hospital launches new action group to improve care for patients with learning disabilities
Keen swimmer Holly heading to Paris as part of British team in European Championships
Kind-hearted woman set up dating agency to help people with learning disabilities find love
Learning disability Passport to better health services
Littlemore Mental Health Centre learning disability unit planned
Make autism about abilities not limits, says professor with condition
Man with learning disabilities died after he swallowed spoon in hospital
MPs urge action on lengthy wait for autism diagnosis
My son Connor Sparrowhawk died needlessly. Anger spurred me into action
Newcastle film helps change Irish disability laws
New figures reveal rise in hate crime against disabled people
New Nottingham safety app launched as UK marks hate crime campaign
New project uncovers hidden histories of people with learning disabilities
North Leeds cafe crowned region’s best
New Lancashire-wide disabled and vulnerable people programme launched
Now we have the tools to better understand why people with down syndrome develop dementia: Prof Tony Holland CBE
People with Autism Represent 'Untapped Reservoir of Talent'
People with challenging behaviour should only be hospitalised as 'last resort', says NICE
Psychiatric wards ‘last resort’ for disabled people with challenging behaviour
Risk that 'insufficient' number of learning disability nurses are being trained, warns HEE
Sheffield dating agency for adults with learning disabilities mark milestone anniversary
Stevenage pupil with learning disabilities wows people with his creative talent for decorative wreaths
Success stories: book celebrates achievements of people with learning disabilities
Tate Liverpool commits to becoming more autism friendly
University cancels learning disability course in wake of bursary removal
Woman with learning disability loses bid to keep children out of foster care
Woman with severe learning disability to get contraceptive patch against mother's wishes
Young boy with Down's syndrome hailed as inspiration as he hired to model in River Island's children's range
Young people from across Essex with learning disabilities take part in Try a Train event


Reports





Requests for information






Saba Salman is raising money through crowd funding to publish the book 'Made Possible' - more information at this link:
The Green Light Toolkit helps mental health services respond effectively to people who have autism or learning disabilities in addition to mental health difficulties. If working on Green Light issues is part of your role, or if you are interested in this topic, the Green Light Discussion Forum is for you. The purpose of the Green Light Discussion Forum is to exchange ideas and solutions so that people receive good support. Send your email address to drew.llewellyn@ndti.org.uk and she will reply with a link called “accept Invitation” for you to click and register


LDNurse.com are looking for new blogs! Read more.


Research






Adults with learning disabilities gain confidence boost from involvement in health research, study finds
Fathers with learning disabilities 'left out of support', study finds
Successful treatment for advanced stage testicular cancer in down syndrome patients


Resources





Fathers with learning disabilities
Improving the quality of Positive Behavioural Support (PBS): The standards for service providers and teams
Personal characteristics and skills required (learning disability nursing)
Supporting people with learning disabilities to have flu vaccinations
Women with learning disabilities are least likely to attend breast screening. Help change this











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