Welcome! The purpose of this bulletin is to keep you in touch with news from the learning disability world in a monthly digest. We hope to include information on the latest policy and research along with easy read information. If you have any requests for information or if you want to share with the Oxleas learning disability community please send them to Steve Hardy or Jill Davies.
If you would like to receive an email alert about future bulletins please send an email to Steve Hardy.
All links are written in blue or grey and worked on the 17th July 2017.
Please sign this very important petition and please share with your friends, families and colleagues #JusticeForOliver
Please sign HERE
Our inspirational son Oliver - a blog by Paula McGowan
Anglian specialist named ‘best learning disability nurse in England’ - flying the flag for RNLD's - Sue Bridges
Great work by University of South Wales Nursing Department! Visit the Bachelor of Nursing (Hons)(Learning Disabilities) Many thanks to John-Marc Comperat for letting us show this poster.
Actress Sarah Gordy speaks about new play
NHS England launch 'Ask Listen Do' visit the site here.
A speech by Norman Lamb MP about Transforming Care Programme in Parliament - here.
Blogs
7th Grade Boy With Autism Stuns School With Perfect Math Score On State Test
A Day in the life of a Intellectual Disabilities Psychiatrist
A day in the life of a learning disabilities nurse
Archbishop Justin Welby: I don't pray for my daughter's disability
Ask, Listen, Do: Oliver’s Story
Antony runs the London Marathon for Mencap!
Can You Understand It? team present at Learning Disability Today!
Continuity of care is vital for people with learning disabilities
Did you say 'learning disability nursing'?
Encouraging physical activity in people with learning disabilities
'Everyone with a learning disability should get the treatment they deserve'
First participants to attend Good Mood Group have completed the course with success!
Get the Tissues Before Hearing This Young Man Explain What It’s Like to Have a Brother with Autism
Helping people with a learning disability live longer by tackling the causes of early death
How a Labour MP and a different approach eventually saved my autistic son
If Autism Is My Superpower, Then July 4th Is My Kryptonite
'Know how better to care for people with learning disabilities'
Ignorance Is Strength - what do we know about the progress of Transforming Care?
Learning Disability Week – improving hospital care
Living with Asperger: I’ve been called ‘spastic’ and ‘freak’ and told by a police officer to ‘grow up’
Many With Autism Engage in SIBs. But What Are They, and What Can Be Done to Help?
Take a Listen to What “Background Noise” Sounds Like for Many on the Spectrum
Theme parks, other family destinations accommodate families with autism
The Royal Liverpool and Broadgreen University Hospital Trust (The Royal) - in spirit of co-production
This Boy Is Graduating High School Even Though He Can Barely Write a Sentence
'We all need compassion and kindness'
Welsh Learning Disability Health Champion Conference: passion, teletubbies, bollards and bears in gowns!
Why did I become a learning disability nurse? Well, I’m biased of course, but I could ask: why didn’t you?
Books
Out now
10 Rules for Ensuring People with Learning Disabilities and Those Who are on the Autism Spectrum Develop 'Challenging Behaviour': ...And Maybe What to Do About it by Damian Milton
10 rules for ensuring autistic people and people with learning disabilities cannot access healthcare by Viki Ainsworth and Jim Blair
A mismatch of salience by Dr. Damian Milton
AUTISM UNCENSORED: Pulling Back the Curtain - Whitney Ellenby
Autism and Intellectual Disability in Adults Volume 2 - Dr. Damian Milton and Prof. Nicola Martin
Autism in a Decentered World - Alice Wexter
Behavior Support for Students with ASD: Practical Help for 10 Common Challenges - Debra Leach
Cognitive Behaviour Therapy for People with Intellectual Disabilities: Thinking creatively - Andrew Jahoda et al
Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalisation - Niklas Altermark
Difference Not Disorder: Understanding Autism Theory in Practice - Dr. Catherine Harve
Making friends at work: Learning to make positive choices in social situations for people with autism - Saffron Gallup
Person-centred Active Support Training Pack (2nd Edition) - Julie Beadle-Brown, Bev Murphy and Jill Bradshaw
Sexuality and Learning Disabilities (2nd edition) - Dr Claire Bates
Successful Health Screening through Desensitisation for People with Learning Disabilities - Lisa Harrington and Sarah Walker
Safeguarding Adults: Key Themes and Issues - Gillian MacIntrye and Ailsa Stewart
Social Survival: A Manual for those with Autism and Other Logical Thinkers - Amy Eleftheriades
Successful Social Stories™ for Young Adults with Autism: Growing Up with Social Stories - Siobhan Timmins
I Am Me: My Personal Journey with My Forty Plus Autistic Son - Marlene Ringler
Belonging and Social Inclusion for People with Intellectual Disabilities - Iva Strnadova
Can You Understand It? team news
Update from the team:
- the can you understand it? team
- talking about the importance of easy read information
- taking part in a role play focussing on 'patient experience'
- going through the top tips of producing easy read information
- sharing examples of good practice when supporting people with communication needs
29 delegates attended the workshop and there was good interaction from the audience. A number if delegates said that it was great having people with learning disabilities deliver a presentation.
- The team also worked on a consent form for Pavilion Publishing which will be shared with the teams
- The team have also approved the following leaflets:
- Easy read section 17 leaflet
- East read Transition leaflet
- The team is now looking at 'How to get help in a mental health crisis' easy read leaflet.
Events
12th September 2018
Autism and Mental Health Conference 2018
20th September 2018
Autism and Technology Conference 2018
3rd October 2018, Bognor Regis
Exploring death, bereavement and learning disability
30th October 2018
Women and Girls Conference 2018
20th October 2018
Pathological Demand Avoidance Conference 2018
28 November 2018, London
Learning Disability Today Exhibition and Learning Day
Guidance and Resources
Autism spectrum disorder: restrictive, repetitive behaviours and interests are poorly understood - The Conversation
Does my relative have capacity to marry or enter into a civil partnership and what can I do to protect them? - Anthony Gold Solicitors
Enough is enough - making reasonable adjustments - Three publications by the RCN
Guides for adult siblings of people with a lifelong learning disability and/or autism - SIBS
Help us make GP practices more accessible – #MyGPandMe - Dimensions
Learning from deaths: Guidance for NHS trusts on working with bereaved families and carers - NHS England
Learning from deaths: Information for families - NHS England
Resources to support safer modification of food and drink - NHS Improvement
A human rights group hits out at the BBC for an ‘appalling’ interview on a British army killing - 7th July, The Canary
Actor Sarah Gordy: 'I cried my eyes out when I was awarded the MBE' - 21st June, Go London
Anxiety app launched on Apple store - 13th July, Learning Disability Today
Asperger syndrome: What is it and how many people does it affect? - 28th June, The Independent
Autism and football in Philly: Therapeutic benefits on and off the field - 5th June, Why-Y
Autistic man who can barely speak finds his voice as rock singer - 22nd June, The Argus
Concern raised over GP support for people with learning disabilities - 15th June, Teeside Live
Dimensions Activate – Methodology - Dimensions
Disabled toilet access: 'I don't want mum helping me use the loo' - 6th June, BBC
Disabled woman dies after nurses left blocked catheter in her causing severe infection and sepsis - 11th June, Bristol Live
Doncaster's Keepmoat Stadium to host national learning disability games this weekend - 26th June, Doncaster Free Press
Employers need to break recruitment traditions to boost diversity - Personnel Today
Down's syndrome lad inspires new boxing class after going toe-to-toe with his own brother - 13th June, Gloucestershire Live
Down’s syndrome graduate Mark Smith gives lesson in how to teach the disabled - 25th June, The Times
Edinburgh Fringe festival introduces autism-friendly backpacks for first time - 6th July, I-News
Facebook criticised by disability charities over advert - 31st May, BBC
Fife at forefront of new internet guidance for people with autism or learning disabilities - 13th June, The Courier
Government introduces bill to overhaul deprivation of liberty law in bid to save councils £200m - 3rd Julu, Community Care
Grieving mum launches petition for new training for all doctors and nurses after son's death - 11th June, Bristol Live
Here’s where you can seek support if you have learning disabilities - 21st June, Kent Messenger
How to stop culture excluding people with learning disabilities - 3rd July, The Independent
How to make people with learning disabilities feel more included in society - 22nd June, The Conversation
Inspirefest snapshot: Making the world of work accessible for those with autism - 12th June, Siliconrepublic
Kent charity sets up theatre company for people with learning disabilities - Kent Messenger
Judge calls for Mental Health Act reform over rising detentions - 5th July, The Guardian
Learning disabilities: Hayden's new confidence as tour guide - 22nd June, BBC
Leading Yorkshire theatre company championing learning disability arts 30 years on - 13th June, Yorkshire Evening Standard
Learning disability organisation ThreeCs creating discovery boxes at Horniman’s community engagement programme - 28th June, South London Press
New disabled boxing club leaves its members 'grinning from ear to ear' - 19th June, Grimsby Live
Parents say son's death was down to 'arrogance' of doctors - 16th April, The Guardian
People with learning disabilities urged to ask about their medication - 20th June, Eastern Daily Press
Sir Vince Cable quizzed by people with learning disabilities - 22nd June, Richmond and Twickenham Times
Sparks Project proving disability is no barrier to inspiring children - 12th June, Derry Journal
Spotting the signs of sight loss - Optometry Today
'SOMETHING'S MISSING IN ME' Robbie Williams fears he may have autism or Asperger’s syndrome - 29th June, The Sun
Sensory day for children with autism being held at Belfast Zoo - 26th June, ITV
Spotlight put on learning disability nursing ahead of awareness week - 15th June, Eastern Daily Press
Tennant to star in learning disability comedy - 19th June, BBC
‘The deaths of young men with learning difficulties still fail to get the scrutiny they deserve’ - 23rd April, I-News
The government promised to ‘deinstitutionalise’ learning disabled people. It’s failed miserably. - 23rd June, The Canary
The Reason I Jump review – a revelatory insight into autism - 17th June, The Guardian
The wonderful story of a caring Scottish community - 4th June, 2018
Thousands with learning disabilities have ‘human rights routinely ignored’ - 5th July, BT News
Trusts told to plan for learning disability workforce shortages in new care standards - 25th June, Nursing Times
Wandsworth community gather at street party to support people with learning disabilities - 28th June, Wandsworth Guardian
'We need a team of nurses, not just one' - mum's plea for learning-disabled patients - 5th July, Stourbridge News
What the Mencap sleep-in payments judgment means for the sector - 13th July, Community Care
Where councils are going wrong in their implementation of the Care Act - 8th June, Community Care
Why children with autism love trains (and the 10 best UK rail adventures for families - 19th June, The Telegraph
Why we want Theresa May to walk in the shoes of people with learning disabilities - 15th June, The Guardian
Young drivers with autism spectrum disorder may need more time to learn basic driving skills - 12th June, EurekAlert!
Requests
The National Autistic Society Too Much Information film focuses on the impact unexpected changes can have on autistic people. Unexpected changes when taking public transport can be overwhelming. 79% of autistic people telling us they feel socially isolated, and for some, the fear of unexpected changes could mean not even leaving the house.
Make public transport autism-friendly, benefitting the 3 million autistic people and their families in the UK. Sign the petition now.
It's time to get nominating for the Autism Professional Awards 2019! There are twelve categories, nominate here.
It's time to get nominating for the Autism Professional Awards 2019! There are twelve categories, nominate here.
Reports
Improving the health of people with a learning disabilities: a public health nursing approach final literature review report - University of West London
Learning Disability Improving Lives Programme - Welsh Government
Learning Disability Improving Lives Programme - Welsh Government
Research
Autistic people at greater risk of becoming homeless – new research - UCL
If people with learning disabilities can’t consent to marry, they’re at risk of forced marriage - University of Nottinghamshire
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